Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 09-28-2015, 12:14 PM #1
miller.5887 miller.5887 is offline
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Default Who Knows?

So I'm at a loss. (sorry for the venting)

I am a little over five months out, and I honestly feel as low as ever.
Ive been traveling to see Dr Collins at UPMC every 6 weeks or so since the end of July ( 3 visits in total ), and my IMPACT scores have improved. At this point all my scores are in the 80th percentile or higher.

So that sounds like good news right? But I still have the foggy/drugged/out of it feeling. Still have the head pressure, and still have the anxiety/depression. Im in this rut, and I feel like I will never get out of it. I would cut off half my toes at this point to be back to where I was.

The only thing they could think to do was increase my dosage of Zoloft, which honestly just made me feel worse.

I dont understand- if my IMPACT scores are saying I am improving, and essentially healed, why am I still so symtomatic.

Is there anyone else on here who has been through a similar experience?

At times I think things are getting a little better, but then as many of you know, it all comes crashing back down
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Old 09-28-2015, 12:29 PM #2
Mark in Idaho Mark in Idaho is offline
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You are misunderstanding the meaning of ImPACT scores. The ImPACT system is primarily used to pull athletes off the field. The ImPACT system only tests a narrow set of functions. Then, it can be combined with other symptoms assessments to determine of the athlete is healed enough to return to play. A return to normal ImPACT score does not overrule continued fogginess, headaches, dizziness, or any other PCS symptoms.

Since you do not have a baseline ImPACT score, They can only use the broad baseline. This is problematic. Return to 80% of the broad population is not relative to 'your' pre-injury function levels.

The only value of the Zoloft is to treat the anxiety and depression. It does not treat or contribute to healing your concussion. It masks symptoms rather than heals them.

What have you been doing to facilitate improvement ? Are you moderating your activity levels ? Are you doing anything to minimize anxiety levels ? What about nutrition and dietary toxins ?

What are your daily activities like ?
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Old 09-28-2015, 02:10 PM #3
Beelzebore92 Beelzebore92 is offline
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Hey there. What you describe sounds very familiar. There were quite a few moments around the 6 month mark that I felt like my healing had not only plateaud, but actually gone backwards. But those feelings passed as well. As the months pass, improvements keep stacking up for me, as long as I do my best to support those changes. And like mark said, that test is quite a narrow aassessment of your functioning, and just one of many possible assessments. You are the first authority on how you feel and how that compares to how you felt before, and so be careful not to get too hung up on anyone else's perception of how you're doing, or how you ought to be feeling.
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-First TBI in 2011. Iron cellar door closed on my head. Undiagnosed PCS, and was unaware of anything regarding TBI at the time.

-2nd TBI in August, 2014. Fell skateboarding and hit head on pavement.

-3rd TBI in November, 2014. Hit in the head at work with a dish rack with full strength by a large employee. CT scan normal. Diagnosed mTBI, PCS, PTSD, migraine with aura, and chronic depression. Symptoms have included: quite severe visual disorders, hearing loss in left ear, lethargy, brain fog, dizziness, disordered sleep, hallucinations and "exploding head syndrome", neck and shoulder pain, migraines, headaches, loss of emotions, all forms of cognitive deficiency, loss of reading/verbal ability, sound/light sensitivity, anxiety, panic attacks. Most notably are a general loss of identity and the disillusionment with the world accompanying trauma. But on the other hand, a new and heightened awareness of the nature of self, others, and of suffering itself.

-As of December, 2015, am still experiencing visual disturbances, memory and speech problems, balance, sensitivity and overstimulation issues, along with the trickier to pinpoint cognitive changes, but feel that I am no longer clawing my way through a waking hell, so feel much better about being alive. Hallucinations and panic attacks are gone (thank God!), getting much better at reading and writing, and remembering/planning my daily tasks. Hopeful for further recovery, but thankful to be at least at 50%.
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Old 09-28-2015, 04:29 PM #4
miller.5887 miller.5887 is offline
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Quote:
Originally Posted by Mark in Idaho View Post
You are misunderstanding the meaning of ImPACT scores. The ImPACT system is primarily used to pull athletes off the field. The ImPACT system only tests a narrow set of functions. Then, it can be combined with other symptoms assessments to determine of the athlete is healed enough to return to play. A return to normal ImPACT score does not overrule continued fogginess, headaches, dizziness, or any other PCS symptoms.

Since you do not have a baseline ImPACT score, They can only use the broad baseline. This is problematic. Return to 80% of the broad population is not relative to 'your' pre-injury function levels.

The only value of the Zoloft is to treat the anxiety and depression. It does not treat or contribute to healing your concussion. It masks symptoms rather than heals them.

What have you been doing to facilitate improvement ? Are you moderating your activity levels ? Are you doing anything to minimize anxiety levels ? What about nutrition and dietary toxins ?

What are your daily activities like ?
I am working full time, trying to exercise regularly, and trying to eat as many fruits and veggies as possible. I'm really not sure what else I can do.
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Old 09-28-2015, 04:43 PM #5
Mark in Idaho Mark in Idaho is offline
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Read the Vitamins sticky and at least get started with B-12, B-50 Complex, D-3, magnesium/calcium, and Omega 3. The injured brain needs more than simply a good diet.

And, do not push the exercise until your head pressure goes away. Just enough exercise for good blood flow. Not enough to cause head pressure.

It sounds like you have never given your brain the rest it needs.
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Old 09-29-2015, 06:12 AM #6
miller.5887 miller.5887 is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Read the Vitamins sticky and at least get started with B-12, B-50 Complex, D-3, magnesium/calcium, and Omega 3. The injured brain needs more than simply a good diet.

And, do not push the exercise until your head pressure goes away. Just enough exercise for good blood flow. Not enough to cause head pressure.

It sounds like you have never given your brain the rest it needs.
Mark,

For 2 months, I did very little. I laid very low and tried to rest lots.
I noticed no improvements.
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Old 09-29-2015, 10:10 AM #7
Mark in Idaho Mark in Idaho is offline
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What were your peak activities during that time ? It is not the amount of rest that is important but rather reducing peak activity levels. But then, you just may need more time. Some do.

Are there any other stressors in your life ? Family or relationship issues, financial, household, job struggles, etc. All can contribute to anxiety and depression. The head pressure can take a long time. For me, it has not been uncommon for head pressure to last 6 months to a year, then return from time to time for no understandable reason. The strain of feeling uncomfortable can feed the depression/anxiety issues.

Zoloft can also have negative effects.
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Old 09-29-2015, 01:52 PM #8
Laupala Laupala is offline
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What is the difference between a headache and head pressure, are these synonymous?
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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Old 09-29-2015, 04:40 PM #9
MicroMan MicroMan is offline
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For me, headaches (migraine and tension type) are present constantly whereas head pressure typically occurs only after over-exertion or over-stimulation. In my case, it feels like there is pressure in my head that builds following these situations. Sometimes it manifests as an uncomfortable feeling as I am talking, but may actually be intense enough to cause pain. Alternately, I encounter head pressure when laying down, dipping my head, etc.; I think this is more or less normal, but since my concussion the pressure I feel when doing these things is much "higher".

I believe the pressure is associated with blood flow; blood travels to and from the head differentially such that "pressure" builds. The pressure effect for me is fairly global across my scalp. To be honest, though, I'm not sure if head pressure and headaches are exclusive events. I suspect they are not, though like everything else associated with PCS it is likely very complicated.

Mark may be better able to contrast the two.
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