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Dr Fong categorizes improvements two ways. Patient reports are one. The other is a repeat of the fMRI. If she sees the brain functioning in the fMRI image in accordance with her 'normal' database, she considers it an improvement.
The patient reports are subjective and hard to substantiate. There have been self-reporting concussion symptoms check lists for 2 decades (SCAT I). They do not necessarily reflect the brain under stress or at its worst performance. Self-reporting in a therapy setting can tend to cause a bias toward improvement as the therapist reinforces the value of small improvements during therapy sessions. I wish she was more forthcoming about these issues. Her claim to her high success rate flies in the face of every other protocol. She did not invent the holy grail of concussion recovery for every patient. Keep in mind that 85% recover spontaneously in 6 weeks or so. How many of her successes are in that 85% ? |
Initial screening
So just got done with a phone interview with Dr. Phong. It all sounds too good to be true, supposedly 85% of her patients have made a full recovery in her words, the other 15% have greatly improved. That is over 400 patients, maybe she has made " the holy grail of concussion recovery" it is $7900 for a week long therapy and can get more expensive if you need more days to get completely better.
She said they will monitor 54 different parts of the brain in real time and each part will have its own list of therapies depending on the dysfunction. I guess it's time to fork over some more money. I will tell everyone about my progress. If it works the world becomes my oyster all over again. She does have some solid credentials, she is the second opinion doctor for the NFL. I told her I was skeptical, she said everyone is but everyone sees an improvement. So.. I am still processing this, is it possible I go do One week of therapy and I become my normal old self again? Sounds too good to be true....! www.youtube.com/watch?v=CVI9dZ618Z0 |
QtipsQ,
Thanks for sharing that. Absolute best of luck to you. When do you anticipate you will have your week? Anything scheduled, and did they mention how soon they were available to have you over? Quote:
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I am up against a wall. I had never had suicidal thoughts till today, and I ended up calling the crisis hotline earlier today. I am so scared that I will just have to make peace with how I am now. And the more I try to accept that, the stronger my darkest thoughts get.
I am scheduled for a treatment with Cognitive FX on January 11th. I have presented many of my questions to them, and they do think I'd be a great candidate. At this point, I am definitely going to go in for that. I am also scheduled for treatment at Dr. Cantu's Concussion Center starting next Monday. Will hope to know more then. Best of luck to all. Quote:
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BUMP
any updates from anyone else on this? I had an interview with Dr Fong and she was like scary optimistic. this is a direct quote from her "97% percent of patients treated have seen 85% or better inprovement" Is it possible shes figured this crap 'disease' out? There is also a pretty long waitlist and its 7900 bucks. Thats a lot of money. |
If you look a bit deeper into how she determines her improvement stats, you will find they should be considered carefully. Her lack of transparency leaves me concerned. I'm not saying her protocol does not help. Just that her anecdotally based claims of xx% improvement need to be carefully considered.
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Gotta try it..
I guess hermantor is up first. I am going to set up a go fund me and see if friends and family can help with the costs. I am a complete skeptic about this but my god if she can improve me even 50% I will be so psyched.
I have to try this because I haven't been able to heal myself. I will also like to see my brain and find out the extent of damage, if it's recoverable and what do the experts think of it. $7900 to get my life back, it's the cost of a used car....! Good luck. I still don't understand how she is planning to circumvent the physically damaged Brain but then again the testimonials on YouTube have people making complete recoveries after 5 days....! |
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Hahaha yup, I feel the same way. January 11-15th, I'll keep you guys posted
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Testimonials from Cognitive FX
Here is Cognitive fx's Twitter feed. Bunch of testimonials..I am thinking if you are still suffering and have the money. You have to try it..right? I mean all these people aren't lying..right?
https://mobile.twitter.com/cognitivefx |
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