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-   -   Mental Bootcamp (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/227281-mental-bootcamp.html)

Mark in Idaho 12-26-2015 02:50 PM

I'd sure like to see some objective criteria of before and after. Some Neuro Psychological scales and other data would be great. A 5 minute YouTube video that says "I'm doing much better." is not helpful. And, as I have said before, some transparency about the treatments/therapies used would be helpful.

If it is so good, why are they not replicating the protocol so it is available in other locations ? A great scientist wants as many as possible to benefit.

Just lots of questions.

qtipsq 12-26-2015 04:53 PM

Agree
 
Completely agree with that statement. I am still a skeptic but then again I have to try it too. I guess the MRI scores are there main objective tool, also financially there is a lot of money to be made by not giving their protocol away. She is a neuropsychologist so she should know all about neuropsychological testing. Supposedly they are trying to get this treatment out to other clinics but it's too complex and they need to train people.

I think the main benefit here is that they can make your injury visible with the fmri. Also having some top concussion doctors to talk to.real doctors, not chiropractors, not PTs but actual MDs and neurosurgeons. So we shall see.

injuredbutrecoverin 12-26-2015 06:00 PM

everyone who does this please come back and report. thanks

Mark in Idaho 12-26-2015 09:45 PM

"Also having some top concussion doctors to talk to.real doctors, not chiropractors, not PTs but actual MDs and neurosurgeons. So we shall see. "

The MD appears to not work in the clinic but rather consult.

They mention submitting their research but I could not find any of it, not even on their web site. They are charging an awful lot of money for a developing protocol.

[The originators of Cognitive FX have solid academic credentials and they've published their protocols in peer-reviewed journals. But they've been open less than two years and their success claims have not been peer-reviewed.

An outside expert who asked not to be identified by name said, "This is based in science" and "it could be" a breakthrough. But the expert said Cognitive still needs to prove that the healing is permanent instead of temporary.

"Obviously," the expert said, "we need some research on it."]

https://www.ksl.com/?sid=36830294&ni...ussion-victims

The research abstracts they list do not have much application to the CogFX protocol.

qtipsq 12-27-2015 01:12 AM

But those testimonials are fascinating..
 
I know Mark, they are charging a lot of money. Feels unfair, feels like I am being taken advantage of but I keep hearing those testimonials and if there is even a 10% chance to see that kind of improvement my mind is telling me I have to try it. Nothing to lose right now, life with PCS is going to be hell. I am 16 months in, living like this forever! I am afraid all of us are not strong enough to deal with the blow this injury serves to a person.

Even though I am trying...Feldenkrais has been helping a lot, being inside my mind feels good, maybe a new career as a feldenkrais instructor will be my move if nothing works out for me. Super slow super peaceful. Maybe it might be key to healing in the long term. For the short term I guess I have to try this and let everyone know if it works.

miller.5887 01-14-2016 03:45 PM

Quote:

Originally Posted by qtipsq (Post 1190299)
I know Mark, they are charging a lot of money. Feels unfair, feels like I am being taken advantage of but I keep hearing those testimonials and if there is even a 10% chance to see that kind of improvement my mind is telling me I have to try it. Nothing to lose right now, life with PCS is going to be hell. I am 16 months in, living like this forever! I am afraid all of us are not strong enough to deal with the blow this injury serves to a person.

Even though I am trying...Feldenkrais has been helping a lot, being inside my mind feels good, maybe a new career as a feldenkrais instructor will be my move if nothing works out for me. Super slow super peaceful. Maybe it might be key to healing in the long term. For the short term I guess I have to try this and let everyone know if it works.

Any more thought on this qtipsq? I believe that hermanator is having his/her treatment his week, and I'm hoping to see some results on here. Im like you where I am super sick of living like this and I feel obligated to at least give this treatment a go.

qtipsq 01-14-2016 04:09 PM

Going to do it February 8th
 
Yeah after listening to every single testimonial I feel like it might be the last place that can heal me. Spending my life in this walking coma doesn't seem too appealing, other option is to go sit and meditate on an island that I used to travel to and learn to accept who I have become. Something I am having a really hard time doing from such a silly accident.

They keep touting really high numbers on their success rate and most of their testimonials are from people 16 to 18 months removed from their injury. I have talked to them a few times and they keep saying everyone is seeing a significant change. I want to see my fmri scan, it's the only place that has specific bio markers for this injury. I know Mark in Idaho has no faith in these places but then again people are healing. It's the only place with so many positive testimonials and the only place where the doctors are super optimistic about outcomes.

To me ,this Brain injury might be one of the worst things that a human can go through. A lot of me can't see how it's possible to go on like this for the rest of our lives. The idea of it makes me sick to my stomach, I am willing to go broke trying to fix it.

qtipsq 01-14-2016 04:16 PM

Their treatment
 
http://www.cognitivefxusa.com/concus...nt-differences It's based in a decade of research on Mtbi.

miller.5887 01-14-2016 04:57 PM

Quote:

Originally Posted by qtipsq (Post 1193277)
http://www.cognitivefxusa.com/concus...nt-differences It's based in a decade of research on Mtbi.

I honestly think their research and the protocol seems pretty logical from a scientific point of view. And the fact that it is valid enough to be accepted as sufficient to prove or disprove brain injury in court makes me think there is even more to it. Unfortunately I didn't win the powerball so I'll need to find a way to get those kinds of monies

Doozer 01-14-2016 06:23 PM

There is no such place in the uk. No such option and no such hope.


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