Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 01-14-2016, 07:54 PM #31
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Default But there are planes!

If you can get the funds together I doubt it's more than a $1000 to fly out to Utah from UK. She supposedly sees patients from all over the world.
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Old 01-14-2016, 09:17 PM #32
Mark in Idaho Mark in Idaho is offline
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Cog FX is not yet admissible in court. They are trying to promote it for that purpose but according to Frye standards (general acceptance) and the more recent Daubert standards, it is a long way from court evidence levels.

Those expert witnesses would need to argue their qualifications and the evidence of the fMRI before a judge. It is called a Daubert motion.

Cog FX appears to be looking for legal opportunities to argue its validity in court.

Other systems with much broader use and acceptance have tried to get past this level of court acceptance.

Just don't use their comment about offering it to legal cases as any sort of validation.
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Old 01-15-2016, 07:28 PM #33
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Default Cog FX Review

Hey everyone,

So i just got back from Cognitive FX. It's a great 4 day bootcamp comprised of different therapies like Neuromuscular, Cognitive, brain games, dynavision.

They've helped with my headaches. But, it is definitely not a silver bullet - or at least was not one for me. Time will be the biggest healer but if you have some money to spare, they can possibly accelerate your healing. According to their fmri I made great strides in the few days I was there, but to be completely honest my symptoms have not changed much. I do feel sharper, and my memory feels sharper. But, my headaches are still there and my biggest symptom of inability to populate emotions is still there. But, I will say that while I was at Cog, a couple of patients did see major major improvements. And they were extremely pleased. So, not a silver bullet for me. But it was extremely helpful for 2 of the 6 other patients there this week.
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Old 01-15-2016, 08:19 PM #34
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Quote:
Originally Posted by hermanator90 View Post
Hey everyone,

So i just got back from Cognitive FX. It's a great 4 day bootcamp comprised of different therapies like Neuromuscular, Cognitive, brain games, dynavision.

They've helped with my headaches. But, it is definitely not a silver bullet - or at least was not one for me. Time will be the biggest healer but if you have some money to spare, they can possibly accelerate your healing. According to their fmri I made great strides in the few days I was there, but to be completely honest my symptoms have not changed much. I do feel sharper, and my memory feels sharper. But, my headaches are still there and my biggest symptom of inability to populate emotions is still there. But, I will say that while I was at Cog, a couple of patients did see major major improvements. And they were extremely pleased. So, not a silver bullet for me. But it was extremely helpful for 2 of the 6 other patients there this week.
So are you saying it was worth the money or not ?? Also can you describe " failure to populate emotions"
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Old 01-15-2016, 08:36 PM #35
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Improvements for 2 out of 6 can easily be placebo effect. Placebo effect can be as high as 60%.

I had hoped to hear a better result.
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Old 01-15-2016, 09:07 PM #36
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I'm not sure if it was worth the money. I would have to reserve judgment on that for the next few weeks as they said these improvements will continue over the next few weeks. I can provide a more honest opinion then.

2 out of the 6 of us had big break throughs. I did not. I'm not entirely sure how the other 3 faired. They might have had improvements as well, I didn't get to talk to them.

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So are you saying it was worth the money or not ?? Also can you describe " failure to populate emotions"
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Old 01-15-2016, 10:42 PM #37
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Originally Posted by Mark in Idaho View Post
Improvements for 2 out of 6 can easily be placebo effect. Placebo effect can be as high as 60%.

I had hoped to hear a better result.
Just out of curiosity where did you get the number that "placebo effect can be as high as 60 percent" it seems to me if that were the case no scientific findings could ever be considered clinically significant.
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Old 01-15-2016, 11:29 PM #38
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Placebo effect can be as high as 60%. Different conditions have different placebo responses. Researchers need to normalize their studies for placebo effect. With concussions, anxiety can be a big cause of worsening symptoms. Placebo can resolve anxiety thus reducing the symptoms made worse by anxiety. Some therapies are preceded by videos that show testimonials of success stories. Other pre-therapy explanations of what kind of results to expect can impact the placebo effect.

Paying a bunch of money can contribute to placebo effect.
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Old 02-28-2016, 03:56 AM #39
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More than a month later - just want to be on the record saying Cognitive FX did absolutely nothing for me. All my symptoms are still there. My headaches are just as bad.

Some people felt like they were helped tremendously while I was there. In my opinion, they also seemed somewhat gullible OR extremely optimistic. Still, I definitely don't know if others were helped or not because I haven't stayed in touch with them. But, for me I got 0 improvement.

Figured I should share since many of you have asked, and many might be wondering. Good luck to all. Things do get better with time. Just gotta find ways to make this bearable in the meantime.
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Old 02-28-2016, 08:27 AM #40
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Thanks for sharing, has the clinic been actively following up with you to see how you're doing? Or have they not followed up at all?
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26 year-old PhD student in evolutionary biology, slipped on ice in Feb 2014 while clipping my fingernails and walking to save time (dumbest reason for PCS ever?). Initially just had headaches and didn't feel quite right, but a minor head bump 5 days later started a downward spiral of anxiety, depression, insomnia and fatigue. Had trouble concentrating on reading/looking at screens

April 2014 - did exertion test, passed, started exercising and doing more, but didn't feel much better.

May 2014 - Went on backpacking trip OK'd by doctor, trip itself went fine, but felt worse a few days after getting back, more difficulty concentrating, worse headaches.

June 2014 - Bumped head on ceiling walking slowly down stairs, no immediate symptoms, but caused worsening headahces, more difficulty concentrating and looking at screens. Have not felt as good as I did before this since this bump.

December 2014 - after feeling relatively better I went xc skiing and fell but didn't hit my head (something my psychologist who specializes in brain injuries told me he hoped would happen so I saw it was OK), felt worse

Feb 2015 - back in grad school, light teaching load and some research, nowhere close to operating at my full capacity. Still have constant headaches, difficulty reading/looking at screens, mild anxiety and depression, and just not feeling like my normal sharp self.

Trying, but struggling, to believe that I'll get back to my old self, or at least get close.
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