Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 11-11-2015, 10:12 AM #1
seth8a seth8a is offline
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I have been spending a lot less time on Neurotalk these days, and this might be one of my last posts, but I have to say that I am doing significantly better. I'm hoping that some things on this list might help others along a similar path of acceptance. I realize that I can do about everything I was able to do before the accident, but with work-arounds and a moderated life. I am very excited about my life and my future!

1. I am now seeing a neuropsychologist and this has made all the difference for me. For the most part, a huge number of my symptoms were anxiety and depression related. I am being treated for both, and this has made a very big difference in my life. I would highly recommend getting evaluated for depression/anxiety if you believe that much of your suffering is caused by either of these. They indeed are symptoms of a head injury--but make up part of the complex soup of symptoms and if untreated make the neurological symptoms much worse.

2. Through working with our HR department and my immediate supervisor a neurologist and my neuropsych, in tandem with a lot of testing, we have worked out a "gradual return to full-time work" schedule here at my workplace. I enjoy my career, but realize that in the future the expectations for me will be different. The expectations for MYSELF are different now. The NPA was proof in the pudding that I sustained damage.

3. My vision was altered by this concussion, and I had my vision checked. Seems as though some of the anxiety I was experiencing is probably vision related, as new prescription glasses have made a great deal of difference for me. I now have a great deal more depth perception, which was probably the thing bothering me the most.

4. I am accepting my new self and actually like him pretty well! More mellow and for the first time in my life I actually stick up for myself and am not such a people pleaser.

5. One of the suggestions was to really concentrate on getting better sleeps. Now that I have the anxiety under control, sleep is a lot better.

I am by no means the same person as I was before the accident, but that is really OK with me at this point. I was literally going insane trying to find that person--who is long gone. We all change anyway, you know, without a concussion?

I want to thank Mark in Idaho specifically for helping me along this path. This guy is amazing, smart and compassionate. We are so lucky to have him on this forum. So, anyway, the long and short of it is this. I realize I will never, ever be the guy I was before March 7, 2015 at about 1:50pm. And in many ways, that is the most important step toward recovery for me.

Life is still very, very good, and I am blessed.

Last edited by seth8a; 11-11-2015 at 12:07 PM.
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"Thanks for this!" says:
Almost (11-11-2015), davOD (11-11-2015), hermanator90 (11-11-2015), hopefulmom (11-12-2015), Laupala (11-12-2015), lilyNYC (11-13-2015), Mark in Idaho (11-11-2015), MicroMan (11-11-2015), pinka16 (11-11-2015), tlmclaughlin424 (11-13-2015)
Old 11-11-2015, 11:35 PM #2
MicroMan MicroMan is offline
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Seth, this is great to hear and congrats on your positive outlook and attitude.

One quick question, and I'm sure this is likely obvious, but what does "NPA" stand for?
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Old 11-12-2015, 12:20 AM #3
Mark in Idaho Mark in Idaho is offline
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NPA stands for Neuro Psychological Assessment. It is a battery of tests that measure cognitive, memory, and executive functioning plus some other factors.
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Old 11-12-2015, 09:18 AM #4
seth8a seth8a is offline
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Quote:
Originally Posted by MicroMan View Post
Seth, this is great to hear and congrats on your positive outlook and attitude.

One quick question, and I'm sure this is likely obvious, but what does "NPA" stand for?
Yes, the neuropsych assessment that I took three weeks ago was the best thing I could have done for myself. It really helped make sense of my injury and my future prognosis.

One of the things that Mark told me that really hit home, about 2 months ago was the following: "Not only is there light at the end of the tunnel, there is light IN the tunnel." I really took that to heart. I am intent on enjoying my life and my family, whatever my condition throws at me. I know that I'm going to have a great future, and that is what I'm really wanting to grasp! I did have a pretty significant head injury and the aftermath has been hard, but things happen in life . . .

I just want to emphasize again--if struggling with depression and anxiety because of the injury, please see a professional to get this treated.
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Old 11-12-2015, 01:55 PM #5
bachissimo bachissimo is offline
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Thanks for this Seth. But really, you are less than a year out, I am not sure why you think you will never be the same. I have read reports of people running marathons 5 year out.

But your attitude of acceptance is the best way to get there. Kudos and good luck.
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Old 11-12-2015, 02:29 PM #6
Mark in Idaho Mark in Idaho is offline
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Just curious. What does running marathons 5 years out have to do with recovery from PCS ?
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Old 11-13-2015, 09:54 AM #7
bachissimo bachissimo is offline
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Quote:
Originally Posted by Mark in Idaho View Post
Just curious. What does running marathons 5 years out have to do with recovery from PCS ?
I always enjoy the challenging points of views you bring Mark. I was an avid runner and now I can't run for 5 mins without getting dizzy for a week.

The day I can run a marathon without having TBI side effects I would definitely feel that the TBI is mostly behind me.

You meant to say this is an unrealistic expectation? Some people cope better with lowering their expectations for the rest of their lives, others like me, who are currently dealing with other medical issues, feel that "I can't take all this, I can take the concussion alone, or I can take the other thing alone, but not both"...

In that respect the success stories are my only hope. By the way, it would be GREAT to have a success/recovery subsection to inspire people.

I think for some of the us the road to recovery is more manageable with a combination of hope and lowered expectations for the medium term.

Thoughts appreciated. Sorry Seth if I am trolling your post, that was not my intention. I am just curious about why you say: "Fully recovering to what I was before the accident seems like an unrealistic goal at this time", I hope you only meant near future and not forever.

Yes adversities make us wiser and give us a thicker skin sometimes. Great for your that you have both acceptance and patience.
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Old 11-12-2015, 10:32 PM #8
seth8a seth8a is offline
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Honestly, in some ways I think that I will be (and am) an even better person after going through this experience. Different, and definitely not the same as I was before March 7th, but really in a lot of ways, better. Even without the symptoms, going through a life changing event like a TBI changes ones perspective for good.

I can still see myself doing pretty much everything I did before . . . but now that my anxiety is under control I can see a whole world of possibilities opening up for me.

Fully recovering to what I was before the accident seems like an unrealistic goal at this time. Living every day one day at a time is the best bet. Slow and steady is the goal.

Quote:
Originally Posted by bachissimo View Post
Thanks for this Seth. But really, you are less than a year out, I am not sure why you think you will never be the same. I have read reports of people running marathons 5 year out.

But your attitude of acceptance is the best way to get there. Kudos and good luck.
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