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Old 08-10-2013, 06:28 PM #1
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KittyLady KittyLady is offline
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Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
KittyLady KittyLady is offline
Member
KittyLady's Avatar
 
Join Date: Apr 2012
Location: Indiana
Posts: 430
10 yr Member
Default A little update on how Im doing

Started Tecfidera, reluctantly I may add, a few days ago, and so far no problems. Im still having the swallowing/choking issues and neuro still wants to do swallow test but with no insurance, I cant do it.

Im down to eating only yogurt and rice pudding, mashed potatoes and if Im "feeling lucky", I'll have some string cheese. Neuro messed with my meds to see if they were making me slur or if it was the MS and glad to say it was the meds!

But the new way he was having me take the meds I was in worse pain so I went back to the old way and surprisingly Im not slurring. Just more numbing and pins and needles and severe stiffness in morning. Ive been waking up in the morning unable to move and the pain, OMG, Im screaming!

My whole body has stiffened up so bad I cant move. Neuro and I cant seem to find a med combo to help or stop this. He said that when my medicare kicks in he would like to put in the baclofen pump and see if that helps. I totally agreed with him!! Im tired of waking up stiff, unable to move and in pain.

I sent away to the MSAA for a bathtub grip and a wheelchair and the easy grip silverware and they finally came in. Its going to be so nice not to have to make sure places have chairs for me when we go out. And now my hands wont cramp up when Im eating! Never thought Id see the day Id get all excited over silverware... lol.
__________________
Dx RRMS April 1992
Yearly flares from 92 to 11
MS induced seizures 2002
Flare Oct 2011
Flare Dec 2011
Left disabled after 2 previous flares
Betaseron '02, Copaxone '12, Tecfidera '13
(allergic reaction to all)
No longer taking any MS therapy meds
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