Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 12-04-2015, 06:52 AM #1
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Default Looking for information about best recovery practices a few weeks out

I just wanted to thank everyone for the information, especially Mark in Idaho who goes out of his way to provide detailed, informative responses in every thread.

I'm just over 3 weeks out from the Mild TBI now, I have seen a dulling of the initial severe symptoms, primarily being a headache which is now substantially reduced and often absent at all. I'm still getting other symptoms though, I find myself suffering from extreme anxiety symptoms on occasion which is not normal for me, I still get slightly recurring Nausea and the strangest one is the consistent tingling in my feet.

I went through and had a head and neck CT to rule out any further injury due to the symptoms taking a few weeks to reside, they were clear. You hear a lot of talk about the 'best methods of recovery' and 'appropriate treatment' but there isn't a lot of detail about that, at what point to you typically deem that the symptoms are mild enough to get back into 'normal life', be that exercising, socialising etc.

Its a bit unfortunate that the medical community doesn't really have strict guidelines for this kind of thing as I haven't found the information very forthcoming.
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Old 12-04-2015, 12:17 PM #2
Mark in Idaho Mark in Idaho is offline
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The consensus is to rest for the first few days then slowly introduce activities that do not cause an increase in symptoms. If going for a walk/exercise causes an increase in headaches, don't do it. If listening to loud music causes an increase, don't do it. And so on.

A neck CT is meaningless to rule out an upper neck injury. They are very subtle. They are often diagnosed with manipulations. If there is a tenderness behind the ears, that indicated a possible neck injury. The treatment is an upper cervical chiro or gentle but skilled Physical Therapist or osteopath. Most garden variety chiros are too aggressive. It also requires discipline to sleep and rest with good straight head and neck posture for a few months or more.

I bet you will find that if you look back, the increase in symptoms have a trigger, especially the anxiety. The concussed brain often struggles to filter out visual and auditory stimulation. Over-stimulation can cause the anxiety, nausea, etc. Your body will be your best guide if you just take the time to listen to it and correlate symptoms with your activities and environment. It might help to get some foam ear plugs. "Macks" makes the best.

You sound like you are a details oriented person. Such people often struggle to recover because they are too symptoms focus. This can be a self perpetuating situation. Learning to let go can be very beneficial.

My best to you.
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Old 12-04-2015, 04:54 PM #3
PLAYSMART STAYSMART PLAYSMART STAYSMART is offline
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If you're still experiencing symptoms then don't push yourself it's still too early. Your brain needs time to heal after a TBI and audio/visual overstimulation can be as bad as strenuous physical exertion in not allow your brain to fully recover.

Most concussions will resolve and there will be no long term ill effects IF properly diagnosed and treated. The real tragedy is when you push yourself too hard early after a TBI (either because you didn't recognize the symptoms, or though that you could ignore them) and that leads to long term problems that are much harder to resolve.

We've learned from the sad experiences of other student athletes who have paid too a high price for lack of understanding of TBI. Better to sit out a game, then to sit out your life.

The really sad part is that the guideline ARE there, it's just that too many are unaware. Educating yourself as you are doing is the best approach!

Good luck and best wishes for a full recovery!
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Old 12-04-2015, 09:14 PM #4
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Quote:
Originally Posted by Mark in Idaho View Post
I bet you will find that if you look back, the increase in symptoms have a trigger, especially the anxiety. The concussed brain often struggles to filter out visual and auditory stimulation. Over-stimulation can cause the anxiety, nausea, etc. Your body will be your best guide if you just take the time to listen to it and correlate symptoms with your activities and environment. It might help to get some foam ear plugs. "Macks" makes the best.

You sound like you are a details oriented person. Such people often struggle to recover because they are too symptoms focus. This can be a self perpetuating situation. Learning to let go can be very beneficial.

My best to you.
Absolutely have a specific trigger, in this instance driving. Had to pull over to rest and calm down a bit. I'm fine on the freeways, its the tight inner city traffic that was causing it. Very strange symptom and hard to relate to other people.

I think after a few weeks now I am learning to just be calm and let it come. In the first few weeks you just really want to get back to normal asap, are itching to live your life, but I think you do learn to calmly do it.

I learnt one thing today, no coffee. I wasn't told that by any doctor, I'll be immediately cutting that out of my diet.

Thanks again for your replies.
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LouiseN (12-17-2015)
Old 12-04-2015, 09:16 PM #5
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Quote:
Originally Posted by PLAYSMART STAYSMART View Post
If you're still experiencing symptoms then don't push yourself it's still too early. Your brain needs time to heal after a TBI and audio/visual overstimulation can be as bad as strenuous physical exertion in not allow your brain to fully recover.

Most concussions will resolve and there will be no long term ill effects IF properly diagnosed and treated. The real tragedy is when you push yourself too hard early after a TBI (either because you didn't recognize the symptoms, or though that you could ignore them) and that leads to long term problems that are much harder to resolve.

We've learned from the sad experiences of other student athletes who have paid too a high price for lack of understanding of TBI. Better to sit out a game, then to sit out your life.

The really sad part is that the guideline ARE there, it's just that too many are unaware. Educating yourself as you are doing is the best approach!

Good luck and best wishes for a full recovery!
yep, that is a very good point. I have thus far avoided any exercises and tried to spend my time rest and recovering. The unfortunate situation I'm not facing is my friends/family/partner don't really understand whats going on and I can sense growing agitation at me 'not just getting better'. Its hard in the first couple of weeks, because most (like me) have literally no idea about concussion or what to do, so its very difficult to follow the right treatment process.
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Old 12-04-2015, 10:19 PM #6
Mark in Idaho Mark in Idaho is offline
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newbie,

Please read the Vitamins sticky at the top. It has the do's and don'ts and some good links. The YouTube video series "You Look Great" is good.

If driving is a trigger, you may need to avoid driving during busy times. Traffic can be a huge cause of over-stimulation. There are just too many things around you to keep track of. The result can be severely degraded driving skills as your brain overloads. Fortunately, you were able to pull over before anything happened. I've been through the same situation but during a driving evaluation. I do very little driving. I have had too many close calls.

The term is over-attending. Your brain is trying to attend to many different things. It is also trying to attend/pay attention to things that it should be ignoring but can't because of your concussion.

It will likely help if you have no music or other distractions in the car.

You really need to avoid those trigger situations. Each one causes a cascade of stress chemistry that you need to spend hours and even days recovering from. You may need to develop a strong spine to stand up to friends and family for the next few weeks or more. Christmas is the worst time to try to recover. There is just so much happening and needing to be done.

As you noticed, no caffeine, plus, no alcohol, no msg, no artificial sweeteners. NO energy drinks, even if they are caffeine free. I should have mentioned these issues first. Sorry I missed that.

If you are struggling with driving, it sounds like you are far more symptomatic that your post suggested. You should consider seriously cutting back on your daily activities until you are virtually symptoms free then start slowly introducing your activities back into your day.

Hope you have a better day tomorrow, especially without the caffeine.

Mark
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Old 12-05-2015, 03:58 AM #7
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Quote:
Originally Posted by Mark in Idaho View Post
newbie,

Please read the Vitamins sticky at the top. It has the do's and don'ts and some good links. The YouTube video series "You Look Great" is good.

If driving is a trigger, you may need to avoid driving during busy times. Traffic can be a huge cause of over-stimulation. There are just too many things around you to keep track of. The result can be severely degraded driving skills as your brain overloads. Fortunately, you were able to pull over before anything happened. I've been through the same situation but during a driving evaluation. I do very little driving. I have had too many close calls.

The term is over-attending. Your brain is trying to attend to many different things. It is also trying to attend/pay attention to things that it should be ignoring but can't because of your concussion.

It will likely help if you have no music or other distractions in the car.

You really need to avoid those trigger situations. Each one causes a cascade of stress chemistry that you need to spend hours and even days recovering from. You may need to develop a strong spine to stand up to friends and family for the next few weeks or more. Christmas is the worst time to try to recover. There is just so much happening and needing to be done.

As you noticed, no caffeine, plus, no alcohol, no msg, no artificial sweeteners. NO energy drinks, even if they are caffeine free. I should have mentioned these issues first. Sorry I missed that.

If you are struggling with driving, it sounds like you are far more symptomatic that your post suggested. You should consider seriously cutting back on your daily activities until you are virtually symptoms free then start slowly introducing your activities back into your day.

Hope you have a better day tomorrow, especially without the caffeine.

Mark
Thanks for the tips Mark.

I watched the video you suggested, a good watch, unfortunately the final video was taken down by a copyright claim, but still overall very enjoyable (and relatable).
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Old 12-15-2015, 02:56 PM #8
LouiseN LouiseN is offline
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I have been reading your posts and they are very helpful. Thank you. I had a concussion a little over two weeks ago now. My symptoms didn't start until two days later. I am definitely getting better but I think as I am getting better I am becoming more aware of what I am not able to do. I am reaching out because you all sound encouraging and calming. I found myself last night as I was falling asleep getting paranoid that I am not a lot better. I didn't get a CT scan - my Dr. offered because he said they do not always show up and the treatment would not change. I started to be mad at myself for just not double checking but then as I said I am improving. I promised my daughter if I wasn't significantly better this week I would get one; however, I now realize I might not be. It may be a longer road than I want to admit to myself. My headaches are mainly gone. Still a bit of pressure feeling. TV obviously sets it off esp if lots of movement. Noises annoying no longer painful. Light sensitivity better. My Dr. said all normal. I did go out for a drive yesterday with my hubby he drove - we actually went to our couples therapy. I stayed very calm but I am not wondering if the effort set me back. I went out last week he dropped me off at Target; I was buying a gift. I felt ok I was standing there and some women banged into my cart so hard -accidentally. She wasn't looking and walking fast. She felt so bad because I started to cry. I have noticed the weepiness when I feel mental struggle like that. That plus other activity set me back. We are supposed to move in three weeks not far away; but, I am not sure about packing.Money is tight. I appreciate you reading this. I see how far worse others are so I feel a bit of not wanting to feel sorry for myself and I guess I just need to get it out of my head so to speak. I am definitely improving; maybe I am just impatient. I cannot take fish oil, anaphylactic to all shellfish and they cannot guarantee. My husband bought me Omega 3 tablets instead-vegan. Anyway I can feel I'm a little stressed -slight headache coming on. I really feel grateful to have others to talk to who get it. My family is understanding and supportive but it scares my girls and I know my husband has stiff upper lip trying to keep faith and solve/not solve it. It's hard on everyone. Once again thanks. I do listen to healing music very softly which is calming.
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Old 12-15-2015, 04:14 PM #9
Mark in Idaho Mark in Idaho is offline
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LouiseN,

Welcome to NeuroTalk. Sorry to hear of your struggles.

As you doctor said, your symptoms and progression are normal. No need for a CT Scan unless you develop worsening symptoms like intense headaches or motor control, similar to stroke symptoms.

You are very early in your recovery. With proper quiet rest and avoiding stress, you have a good chance (85%) of a spontaneous recovery within 6 weeks. Yuck, 6 weeks. That is just a statistic. Every concussion is different.

This is the worst time of year to have a concussion because of all the busyness and stress for Christmas, etc. Noise, lights, socializing, shopping etc. I suggest you get some foam earplugs. The Mack's brand appear to be the best. They will help with the crowd noise.

The sudden crying from a minor disturbance is not uncommon. People usually are understanding to a simple "I'm dealing with a concussion and normal crowds and noise are a struggle."

When riding in the car, try to not look at things close to the car. They move too fast. Instead, focus in the distance. It will be much less stress.

Carlson's makes some high purity fish oil. They have a salmon version that should be safe. Plus, get the B-12, B-50 Complex, D-3 and magnesium citrate supplement regimen going. Read the vitamins sticky at the top. It has some good links at the bottom.

My best to you.
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"Be still and know that I am God" Psalm 46:10
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Old 12-15-2015, 11:08 PM #10
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Newbie,

I am 21 months post injury.

Last month was my first time traveling since my injury and I noticed I was having fun driving on the freeway. Always enjoyed tight traffic at freeway speeds...reminds me of my racing days.

I have been driving for 7 months again but was only comfortable on quiet country roads and had to work extra hard at vigilance in traffic or not drive at all. The last month I feel more like myself but am definitely driving slower.

Bud
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