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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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12-14-2015, 06:14 PM | #1 | ||
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I have been dealing with PCS for about 10 months now. The main symptom I still struggle with is light sensitivity. I have been able to cope with it by wearing a hat with a brim, or wearing sunglasses when necessary. I understand that light sensitivity some times can take a long time to go away. One thing that I am also dealing with, that may relate to this is a problem when I wear glasses or contacts. After wearing my glasses or contacts for an extended period of time (maybe an hour or more), my eyes some times get extremely tired and sore. Usually the eye fatigue and soreness goes away after taking out the contacts or taking off the glasses, but this can be a big problem when I need to see long distances for long period of time. I was just wondering if anyone else has experienced problems similar to this, and if so, how did you deal with it?
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12-14-2015, 06:33 PM | #2 | ||
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I have prisms in my glasses and have been going to vision therapy for about 6 months. I had convergence issues as well. Good luck! |
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"Thanks for this!" says: | Tommy459251 (12-29-2015) |
12-14-2015, 11:43 PM | #3 | ||
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Tommy,
I have to take my glasses off to give my head a rest. When my head gets a certain hurt to it I take the glasses off and poof, things calm down. I can actually feel my left eye move when I take them off. Bud |
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"Thanks for this!" says: | Tommy459251 (12-29-2015) |
12-23-2015, 12:45 AM | #4 | |||
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here is how i solve my light sensitivity:
i don't drive. when i get in the car: i wear regular glasses, then on top, i wear Larry David's dad sunglasses. i have THREE of those roll up sunglasses you get when you get your eyes dialated. if that is not enough, i have a sleep mask that you would wear like on an airplane. if more protection is needed, have a a ski make i pull over the sleep mask. most likely that did not help you or answer your question. lo siento...
__________________
Background: 52 year old with 25+ years of problems associated with Fibromyalgia... What happened: while seeking relief from the scourge of fibro, i rec'd 12-15 increasingly significant concussions to my brain stem from a risky chiropractic adjustment. Last one on May 10, 2013...at 11:45 AM that day, my life changed instantly. Symptoms: cognitive dysfunction, sleep disruption, highly emotional, easily overwhelmed & overloaded, unrelenting tinnitus, memory loss, facial masking, difficulty with speech, trouble finding words, headache, widespread Fibro pain mostly in my neck, shoulders, back, hips, knees... unable to: drive or ride in a moving vehicle for any length of time, watch TV or movie, read books, tolerate more than one soft conversation at a time. i am hyper sensitive to light, noise, motion and crave dark, quiet and very, very slow... Current Meds: 10 mg Ritalin, 450 mg Lyrica 5 mg prednisone (aka poison) amatryptaline 5 mg melatonin plus daily vitamin & supplement regimen: B, D, Fish Oil, plus a lot of brain food: nuts, berries, fish, etc,.. legal, MM approved by ALL my docs for 2 very limited purposes.(not recommended for all, be cautious) 2 mg Valium as needed Tramadol as needed Percocet as needed lidocaine patches (yea!) Outpatient Infusion for migraine cocktail once per week as needed |
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"Thanks for this!" says: | Tommy459251 (12-29-2015) |
12-23-2015, 01:11 AM | #5 | ||
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After 4.5 years, we finally learned that my daughter's light sensitivity was due to migraines. The accident triggered a genetic migraine gene. We were diagnosed at UCSF medical facility in CA.
What has helped her was tinted prism glasses. She had perfect vision but was unable to read for any length of time after the accident. Now she can read |
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"Thanks for this!" says: | chocolatebell (12-30-2015), Tommy459251 (12-29-2015) |
12-24-2015, 04:18 PM | #6 | ||
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Junior Member
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I would try seeing an optometrist that deals with people with concussion problems. There's a chance that eye symptoms are caused by problems with your peripheral vision, they were for me. Make sure it's someone that deals with concussions as the tests are different, but getting this fixed has made the most significant difference for me.
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"Thanks for this!" says: | Tommy459251 (12-29-2015) |
12-30-2015, 09:20 PM | #7 | ||
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I am 3.5 yrs past my concussion and light sensitivity and eye issues are my biggest remaining symptom. I still wear sunglasses anytime i am outside rain or shine, and I have double vision when I am tired, (letters have shadows above them.) Also I notice at night I have trouble reading any lighted signs, especially ones where the words are written in green lights. Red gas station numbers will be blurry but green ones are a giant blob. I have seen a neuroopthamologist a few times and he has never offered any solutions, just says to give it time. Maybe I should look for someone else.
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12-30-2015, 11:00 PM | #8 | ||
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For people with eye issues, I am doing the Seeing Clearly feldenkrais excercises, it's a commitment. You do them two hours a day for a month and see if you feel a change. David Webber healed his blindness through them, he is also the practitioner who teaches them. Just another tool to heal...if you are dedicated.. Here is the link on YouTube.com the cd is $60 on the feldenkrais institutes website. Type in YouTube Seeing Clealry: a feldenkrais exploration of vision. My eyes feel way better after the session...so there is hope in there, especially for people 2 or three years out. It feels way better than vision therapy in my opinion.
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01-07-2016, 09:08 PM | #9 | ||
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For the first year or two I wore sunglasses rain or shine and indoors shopping.
Now most days I don't need sunglasses all the time. Sometimes I do though. I have seen vision therapists and vestibular therapists on and off for 2.5 years now. I find if they are qualified they can be quite helpful in reducing symptoms. The guy I'm seeing now is working on a lot of focusing activities as he believes my focusing system is compromised. If you can't find a competent vision therapist try to find a good sports optometrist. they often see lots of concussion patients.
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Large deep left-hemisphere cerebellar lesion removed in early 2013. Age of surgery 22. |
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01-08-2016, 01:28 AM | #10 | ||
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I went to a neuro optometrist yesterday and today for a bunch of testing, Mark located this office for me.
After today the diagnosis is 1. My left eye is looking up from where it should be 2. My eyes are not working together 3. they wander a lot when trying to focus on a subject 4. Unable to stay focused for a sustained periods d of time Ditching bifocals for now and 2 seperate pairs of glasses with prisms for near and far with therapy. Prognosis is positive at this point depending on my dedication I am told. I have been able to tell something was out of whack but assumed it was my head and anxiety causing me to stop focusing and let things blur but doc says the way my eyes are will cause a great deal of fatigue, headaches and anxiety and the blurring was a way to rest. Bud |
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