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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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Topamax was the med that finally got rid of my headaches. I took in in conjunction with an anti-depressant and had no significant problems.
A couple of side effects can be a little weird. I got tingly fingers if I wasn't well hydrated. It can also make you a little slow on the uptake, especially with word-finding -- hence the nickname "Dopamax." Anyway, in my experience it was a good drug and helped a lot, with a couple quirks.
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mTBI and PCS after sledding accident 1-17-2011 Was experiencing: Persistent headaches, fatigue, slowed cognitive functions, depression Symptoms exacerbated by being in a crowd, watching TV, driving, other miscellaneous stress & sensory overload Sciatica/piriformis syndrome with numbness & loss of reflex Largely recovered after participating in Nedley Depression Recovery Program March 2012: . Eowyn Rides Again: My Journey Back from Concussion . |
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"Thanks for this!" says: | MicroMan (01-20-2016) |
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Hello MicroMan
I'm Jenna I have been on cymbalta for over 10yrs. 120mg daily. After my injury I lived with daily migraines for over 2 years. Your daily struggle to exist is not lost on me. Don't give up. Topamax side effects were too much for me. I've tried a handful of meds that names r eluding me presently. I am now on a lot of gabapentin. I don't live with daily migraines. 6-7 month give or take since 4/2015. I take neudexta and memantine also. I've had therapy, many sets of shots in back of head. Nerves burned on each side of head. 27 months after my tbi I had a massive stroke. Hemorage with clots 4 in brain. I live by do what is good for the soul. Truly. I keep everything in my life as positive as possible. It has transformed my life in great ways. People around me either respect my boundaries or they can leave. Keep searching til u find your tribe of doctors. If they aren't the right fit move on. All of my Drs are great and there's no ego in the way they all are determined to do what is needed to help me and I am take part in the action plan. Be well & well minded, Jenna 🙂
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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"Thanks for this!" says: | MicroMan (01-20-2016) |
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#3 | ||
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Junior Member
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1. How effective have you found Topamax in reducing the number and intensity of your headaches?
I found Topamax was like magic. I had a headache for over a year and started taking it and they stopped. I am on a low dose (the doctor said) 100 mg per day. I still get flashing lights and spots but not pain. You need to take it every day and increase your dose slowly. I have minor side effects and have to drink water more often. I also noticed that some food tasted different. 2. Has anyone used Topamax in conjunction with Cymbalta? I'm on a very high does of Cymbalta (120 mg) and I'm a bit concerned with adding another neuro-impacting intervention to my regimen No I also take Amitriptyline. |
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"Thanks for this!" says: | MicroMan (01-21-2016) |
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I would like to know more about this drug. Is it good for TBI? How can I ask my general physician for it?
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#5 | ||
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Hi microman, can you please tell me more about your Botox treatments? My dr. Is considering it as nothing else as helped. I feel like I'd rather go medical marijuana route as I fear the side effects of Botox shots and any cosmetic changes. Thanks
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#6 | ||
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Hi Today,
I had responded to this in the other post I had put up asking about Tramadol. Whether it's worth it or not is up to you. It's a bit costly and other than a "heavy" feeling on your forehead, I had no side effects that were unpleasant. One thing, though, having 20-30 injections isn't a lot of fun... they hurt! |
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#7 | ||
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Junior Member
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I am not sure which drug you are asking about? The Topamax is for migraine like headaches. Topamax is not a narcotic so your general physician would be the correct person to talk with.
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