Hey Everybody

Long time, I have been following all the threads on here and always a ton of good information as well as experience so thanks for all that.

Firstly, I don't think repeat concussions is a myth, I am writing this because this week I was sent through work to attend a conference and one of the speakers was a "chronic concussion' clinic. I am currently in the care of a concussion clinic that needs no quotation marks if you catch my drift.

I wanted to hear everyone's thoughts on this, during the speaking, it was essentially indicated by the Psychologist (non PHD) that anything that persists past a few months is almost entirely psych-- IE you believe its incurable and therefore it is that. It was also said that after 12 weeks of therapy, balance exercises pacing exercises, you know, all the stuff we have all been through that its cured and anything remaining is something else.

She also said that having more concussions has no bearing on the long term effects and went on to say that unless you are a professional athlete experiencing daily head trauma that there is nothing to worry about.

While I was not a professional athlete, I played high level contact sports until
a couple years ago and my concussions have been getting worse, and closer together and that is not something I am making up.

While I have very little concern about CTE and the like, I am almost positive everything I have read and been told flies in the face of what she is saying, I guess what I am asking is it worth my time to send this "doctors" office my thoughts, or how you guys would handle it.


AM I wrong, is it completely curable for everyone?

This was only the tip of the iceberg, I sat there with my jaw on the floor as she said these things.

Well I was just beyond frustrated, and she is probably lucky I am as far recovered as I am or they would have had to haul me out of there.

Thanks for being my sounding board please give me your take

Have a great weekend.

This is total BS. I've had a constant migraine for 3 years as a result of repeated Concussions. What is the name of her concussion clinic? Who else has had experience like this? I used to be a professor of the philosophy of science and I'm going to write an article about the "science" of " concussions." So that we can start dealing with this public health problem in a reasonable way. I hope to hear more stories about concussion myths and mistreatment by doctors.

It is not uncommon for the psychological industry to make such outlandish claims. This has been their mantra for decades. But, when 3 different Neuro Psych Assessments administered by 3 different Neuro Psychs result in a very similar diagnosis with almost perfect validity scores, it is easy to prove her wrong. **

She is partially correct in saying that there are many psychological symptoms that persist but they are not the sole cause of persistent symptoms.

**

Not often I read a post that upsets me.....

This one did.....well I disagree with there OPINIONS! lol

I wonder what there spin on CTE is?

I want to hit a head that says things such as that...give them something to think about.

I know that's a terrible reaction but PCS is a terrible state to be in.

Bud

I wouldn't even give her as much credit as Mark. Yes, there are many psychological symptoms that persist. But as far as I'm aware, there's no evidence that they are the cause rather than the symptom of a damaged brain. This is pure speculation. It's pseudoscience.

I tend to agree with this, psych symptoms are without a doubt involved here at some level, but her explanation left the impression it is self belief, and self created, where my concussion doctor has numerous times said to me that the depression anxiety etc is likely related to organic injury. Even my psychologist that I use who smartly never tries to explain the injury or claim to be an expert tends to think it's a result of the concussions I slipped into depression.

To her point of expectation of recovery, she said also if you think it will not improve it won't, I e those in the first injured stage their outcome is based a lot on belief. Well I have I had who knows how many concussions , a lot, and my belief was this we oils be exactly like the rest couple weeks and back at it, even a couple months in I was not all that concerned.

I have read enough peer reviewed research to know that this phenomena is not purely made up.

I appreciate the responses and support it is tough to live with something like this and have someone with less education on the subject call herself an expert and throw certainties out. Like absolutes. Concussion just doesn't work in absolutes.

Here is one for you guys that I just recalled. She also said, the reason they don't see anything on imaging mri Ct etc, is because there is nothing going on. This was quite something to hear. I guess she's also qualified to speak on imaging.

Well again thanks, you guys are a great support and somewhere to throw my frustration. I do much better at not getting caught up in it but this stuff got to me.

I agree that for psychological sanity it's often easier to avoid thinking about these things. I think this is such a huge public health problem that these myths need to be exposed. I had a neurologist tell me that it was all "in my head" because he couldn't find anything on it MRI. To be blunt, no one with even a rudimentary understanding of the science, would make such a statement. I had three different neurologist tell me that going back to work early could not lead to a long long time set back. I was recovering fine at that point I could walk and talk and read and watch TV. When I tried to return to work as a full-time college professor, the overstimulation cause my migraine to spiral out of control. I have been bed-bound for the last 2 years. This is why I'm writing this article. And I'm here to try to get more stories and more evidence of these myths so that we can prevent other people from suffering the way that I have.

When I tried to return to work as a pediatric therapist with accommodations, I was constantly overwhelmed/overstimulated by my sound sensitivity and auditory processing issues. I had been encouraged to return to work for months, but took 11 months until I did. Stupid me! I was on my way to recovering before I stepped foot back into work. Four weeks later, I was hit in a he back of my head by another student. Three days later(just like the first injury 1 year and 1 week before) the severe headaches, dizziness and nausea came back full force and haven't left in over 1 1/2 years. So unnecessary had the principal listened to my fears of working with certain students due to their behavioral issues.
PCS has drastically changed my life from being an active, outgoing individual to a fairly sedentary, reclusive individual who prefers staying in her backyard and talking to her plants--they won't hit or push me or talk loudly and offer beauty and relief to me.
FYI--tai chi classes have been very helpful in many ways. The only part of class that is difficult is before the class starts (can't take the chit chatting), but I tell myself the class is worth it and it always is!
Off to see a neurologist for an IME to deal with my permanency of disability. This should be interesting as I haven't met a neuro yet who could accurately test visual and vestibular issues with their wonderful neuro exam. This one just might get a lesson from me as I am fed up with incompetent and insensitive medical professionals who have no idea what it is like to live with PCS!


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