Hi there

I guess I'm just looking for some support. After over 2 years I still have this constant dizzy / off balance / and "heavy" feeling in my head. Some days it is worse than others. Activity and busy environments make it worse. I can't move around freely and always have to be careful not to get too dizzy.

I've been doing vestibular therapy which helped a lot in the first 2 years. Now it's helpfulness has seemed to wane. I feel like my neck has something to do with it. I've had that treated with good results, but something is still "off" with my neck.

I am starting vision therapy and hoping that will help some more. But I am at a loss for what else to do. Some days it is very hard to deal with the dizzy feeling.

Has anyone else been dizzy for this long? How do you deal with it in daily life?

Thank you

A large part of balance is based on vision. Resolving vision issues may help with balance issues. Did your vestibular therapist consider your vision ?

As an example. When someone first gets glasses or has a major change in prescription, balance can take a while to catch up. The floor and ceiling seems to be moving or in a different place than expected. Vision issues could do the same.

Balance is an autonomic function with inputs from the eyes, ears and somatosensory, and is regulated by the brain stem. Balance disorders which produce dizzyness can arise from miscommunication of any of these components. If you've addressed the eyes and ears without solving the problem, look to the brain stem. Various factors can contribute to its dysfunction, including chronic inflammation. If you have neck issues, that may be irritating the brain stem. Consider Low Level Laser Therapy targeting the brain stem and the neck (muscles and bones) using 810 nm and 908 nm Near Infrared Wavelengths. This therapy is safe and backed by an overwhelming amount of scientific research. It is also cost effective, I paid $25/session at my selected facility.

Also, with vestibular loss can arise a disorder called visual-vestibular mismatch. This is treated with compensation techniques and physio that involves habituating to the motions that trigger symptoms.

I would consider the brain stem first. If that produces no results then dig deeper with the VVM. I've had success with both.

Thank you Mark and Hains

Yes, I have been doing some vision related exercises in vestibular rehab and have recently started vision-specific therapy with a special optometrist. I am going to keep up with this and see if it helps.

Hains - I am interested in the low level laser therapy for the neck. Is there a website or organization that can help one find a practitioner that does this? How did you find your practitioner that helped you? How are your symptoms now?

My Naturopath has a unit in-house. However, in my research a came across a product locator (Google search Theralase Clinic Locator, I can't post links).

I use the Theralase TLC 900-CH which is a multi-laser unit that uses 660nm (red) and 908 nm (NIR). There are other similar products. The important parameters are wavelength and power settings. The 810 nm wavelength is also beneficial, so I wouldn't discriminate against it if you find something of the sort nearby.

I linked my insomnia and dizzyness back to my brain stem, hence the suggestion. I'm half way through my initial 10 session treatment plan and have noticed a significant improvement in sleep and my dizzyness has pretty much stopped. Additionally, my neck feels looser after every session. All this has happened since starting the LLLT treatment.

I can't say for sure that this is the miracle pill because i am also doing myofacial release, VVM excercises, breath training (Wim Hof), and Vielight Intranasal Infrared, concurrently. However, since starting the Theralase treatment I actually feel like my PCS is coming to an end (after 20 months), so I definitely endorse the product and treatment.

Hains - thank you, that is great information. I'm glad you have found things that help you! Just one more question - is cold laser the same thing as LLLT? I see a lot of PTs and Chiros that say they do cold laser but it doesn't necessarily say "LLLT".

CatOhio - yes it takes a great deal of patience! Keep up the good work! Some days are better than others, but I try not to ever give up hope. It sounds like you are doing a lot of good things. I would say keep up with the vestibular and vision therapy. It can take a long time and progress is slow, but I believe it helps a lot of people. Acupuncture also really helped me with anxiety, stress and some of the dizziness and neck issues too.

Take care

Hi all,

Glad I am not alone in this, but I know it is brutal. Could be worse of course, but this really has me angry/depressed/slow! I need to update my history too.

Wanted to run something by everyone...I had been doing behavioral optometry, but not much progress, ( I do have prism lenses for work). Then pursued another PT (after insurance denying both PT and speech therapy).

Recently resumed Carrick chiro since not seeing improvement for nearly 2 yrs. Sorry for all the history- my question relates to vision and vestibular therapy.
I am now being told that the gaze stabilization needs to precede vestibular rehab.
Does anyone have any experience/input on that?

Thanks,
Grace

Yes, Cold Laser and LLLT are interchangeable terms.

My research differs slightly from Mark's (below). You need to focus on 2 variables: Wavelength and Power. I mentioned 660nm, 810nm, and 908nm as the specific wavelengths confirmed as therapeutic in the scientific literature. Power output is what controls the depth of penetration into the body. The scientific literature suggests that LED lights are effective but do not penetrate as deep as lasers. Therefore, lasers are more effective for large muscles, hard tissue and brain injuries. An LED will never penetrate the skull, but a laser with a high, but safe, power output (eg. 75-100mW) has a chance.

In your research you will come across varying units. Wavelengths, an expression of light, are usually measured in nanometers (nm), different wavelengths have different effects on the body. mTBI and whiplash treatment research suggest 660nm, 810nm, and 908nm. Power, the electrical output of the device projecting the wavelength, is measured in Watts (W) or milliWatts (mW). Power density (mW/cm2) is the power output per area (cm2; metric measurement), which is the coverage on your body. Energy, measured in Joules (J), is Power(w)*Time(s). Energy density (a.k.a dosage), is measured as (J/cm2). Some people will debate the appropriateness of the energy density measurement, just ignore the conversation as it will not help with your recovery. Rather, the unit you select should come with some kind of treatment protocol. Stick with that as it was approved by the manufacturer.

Also note that exceeding the recommended treatment times will cause overheating of the area and will result in inflammation, negating any therapeutic effects. I made this mistake early on. Please learn from my mistakes.

I actively use the following protocols, and am finding them to be effective. They may not be the best, but with my resources I have refined my treatment to this:

Brain Stem via back of the skull, through the cerebellum: 908nm, 60 seconds, 75mW, 1.13mW/cm2.

Neck (hard tissue): 908nm, 180 seconds, 60mW, 2.7mW/cm2.

Neck & Upper back (soft tissue): 908nm, 180 seconds, 50mW, 2.25mW/cm2.

I read your post and I have to say that your lingering symptoms sound a lot like mine except that this is only my 8th month. I've been in vestibular and vision therapy since March and had some improvements but I'm still constantly dizzy. After reading that you are still battling with dizziness 2 years in, that lets me know I have to continue to be patient. I wear sunglasses to manage my dizziness in my daily life outside of my house. I used to feel uncomfortable wearing them inside of stores, but they help me greatly by stabilizing the environment.

I went to see my vision therapist yesterday for our usual visit and she took my measurements again and noticed my vision has changed. Now she feels I'm ready for a little bit of prism in my glasses (I never needed glasses prior to the concussion).

I have neck issues too including a bulging disc at c6-c7 and a pinched nerve. After months of being in physical therapy, I haven't found any neck relief. I just started getting weekly medical massages 2 weeks ago and that does seem to help. I have been using a TENS unit, Theracane, half foam roller, pregnancy pillow as tools to address my neck when I'm at home and those provide some relief.

I've also just started incorporating essential oils to help me deal with stress, anxiety, and tension.