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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | ||
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Tomorrow I see an ENT doctor for vocal issues. However, I want to also bring up this head sensitivity problem that some on here seem to have.
I was talking with a lady on another forum, who also has the head sensitivity to movements and bumps. She was recently diagnosed with PF in both ears. This one symptom is better than it has been in the past, but it still a major problem. Running, jumping, shaking my head "yes" and "no" leave me feeling dazed and light headed. |
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#2 | ||
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Legendary
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Check out the past posts by RussiaRlz. I think he had PF treatment but was misdiagnosed and the ENT worked on the wrong ear at first.
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Mark in Idaho "Be still and know that I am God" Psalm 46:10 |
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"Thanks for this!" says: | JBuckl (02-07-2017) |
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#3 | |||
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I am very sensitive to visual stimuli, movement, and sound. It drains my neuro energy. Besides the tbi I also have vestibular nerve damage. Not sure if it's the tbi or the nerve damage that causes mine.
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. *TBI with mild to severe damage November 2012 from car crash. Stroke with hemorage & 4 clots in veins in brain Feb/Mar 2015. *Vestibular damage, PCS, hypercusis, severe visual processing and tracking issues, short term memory loss, headaches/migraines, occipital neuralgia, cognitive issues, neurological issues, brain fog, brain fatigue when over stimulated, twitching, vertigo, neck issues, nerve issues, PTSD, personality change, Since stroke left side weakness, rage, worsening of vestibular problems, recall, speech, memory. *Can't drive or work. Have done occupational therapy, cognitive therapy, physical therapy. Learning work arounds, and strategies to be competent in daily life. Change your attitude/perspective changes your life. As TBI survivors this is a vital part of our healing and living. *Working on getting to know and accept the new me. |
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#4 | ||
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I'm the guy that Mark is referring to. You can find my other posts on the explanation of my surgery/outcome.
Long story short, the doctor talked me into doing a surgery even though the tests were inconclusive, he switched ears the day before the surgery, and I was desperate to do something. I felt worse for about three months even though the doc kept telling me it's normal (although his nurse told me that what was going on with me wasn't normal), and in the end was stuck with a $14K bill for a surgery that I didn't need.
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12/02/2012 - Light concussion at boxing practice. Ended up having PCS for about 3 months. March 2013 - Thought that since most of my symptoms resolved I could start having fun again. Went snowmobiling once (didn't hit my head) and concussion symptoms returned and got even worse than before. June 2013 - accidentally bumped my head against a deck railing, and had a month-long setback. November 2013 - drove to work after a big snowstorm and the roads were very rough, ended up having another setback. 2014 - Having setbacks after coughing/sneezing too much, or someone slapping me on the back, or any other significant jarring. Feb 2014 - Started seeing Atlas Orthogonal chiro - most helpful doc so far. June 2014 - Two months of physical/visual therapy - no noticeable improvement. September 2014 - Diagnosed with Perilymph Fistula in right ear. November 2014 - Fistula surgery (switched to left ear before the surgery after additional testing). January 2016 - Quit work to "work" on figuring out PCS, so far it seems that eyes/vision issues are the most contributing factor, especially computer work. Current symptoms are: inconsistent sleep patterns, headaches, vertigo/dizziness, anxiety/panic attacks, mental fog/problems with concentration, problems with computer screens. |
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