Lynlee,
I am so sorry you are having so much frustration. I wish I knew more about the cranial sacral therapies but i do not and thus, feel unworthy to comment. If it is causing alot of pain and you feel pretty hesitant, maybe you should wait a little. You do not need to add to an already full plate. That may be the best thing, rest give yourself some time and then approach the therapy. You are a very strong woman, but even strong people have to pace their challenges carefully and you have to be ready for them. Carry on as you do so well!

Hi Lynlee, I think you should follow your instincts on this. Maybe a second opinion would help too. Have you considered taking a few month off from work so you wouldn't lose you license? Maybe by then you would know if the treatments are working or not. I am sure this is a difficult decision for you and it would be wonderful if you could get better.

Hi, this is my 2nd attempt at this posting - somehow I managed to delete the first one I did and couldn't undo it - goodness only knows how I managed to do that!

Anyway, my GP and I have an agreement that we will always be brutually honest with each other. So told all about the chiropractor etc and all my fears about it. He told me that he had never heard of any miracles with PCS being cured by a chiropractor or an osteopath and that they often promise more than can be practically delivered. (And I have had enough disappointments over the years)

Regarding my neck = as it has been problem free for sometime it would not be a good idea to interfere with it = that is what I am thinking as well.

So anyway my nortriptyline has been upped to 75mg from 50mg (apparently 50 mg is like a muscle relaxant to send you to sleep) and now I am on low antidepressant levels. I knew that I was on the way to being depressed again as I was panicking about very minor things again - I guess at least I knew I was like that - it would be worse if I didn't.

So now I think I will repeat the x rays that the temp accidentally wrecked and make my decision upon what they show up.

Yesterday I gave myself a major scare, I was on my mini step ladder (only 2 steps on it) putting Xmas decorations away in the cupboard above the fridge, when I went to step down I thought that I was stepping onto the 1st step but it was actually the floor which was a lot closer than I thought so lost balance went staggering backwards, fell flat on my back and but some instinct made me hold my head up - if not it would have hit the cupboards across the other side of the kitchen. I was very very lucky. Could understand it if I had glasses on with the bit of a gap in your sight, but since having my eyes lasered I didn't think I would be so clumbsy again.

Went and checked out the vineyard yesterday that is having the Joe Cocker concert tomorrow - really nice place- so looking forward to it!!

Lynlee, Sounds like you had a good chat with your GP. It would be interesting to read what your X-Rays show.

The Chiropractic work I had done were not to treat the PCS symptoms. This therapy was used to put my spine back in alignment so my body could heal itself. The result from this therapy were positive for me but it took a long time.

I did a little research on Craniosacral Massage and I understand the principals in this type of therapy. Ran across a good book on this subject Touchstone for Natural Healing by John Upledger and I'll see if I can find a copy at the book store next week.

Thanks for sharing Lynlee.

Take Care Jeffn

Lynlee, i'm glad to read that you did not hit your head. My son was walking up an icy driveway over Christmas breck and i watched him fall and really overeacted. He did not hit his head but I told him that if and when he ever falls again try to do whatever you can not to land on your head. He has so put his head injury behind him but I have not and probably never will. The mother protective instinct is such a powerful and beautiful thing. That kind of love is so easy and simple. Stay well and enjoy your concert.

Still being new to all this PCS stuff, I'm not sure how much advice I can provide, but I know it has been very, very helpful to just read about other people's challenges and successes. Nancy -- I think of your son every day and keep hold of the thought that my son will too be back to normal and this will be a distant memory -- for him at least!

Quick update: My son is about 5 weeks into PCS; we're meeting with a Neuropsychologist tomorrow (Dr. McGrath) for some neuro-cognitive testing and an action plan; an MRI is scheduled for next week; we have an appointment with a private Neurosurgeon (Dr. Cantu) next week for a 2nd opinion. His headaches are still debilitating, he's not back to school and our lives are still upside-down. (Nancy -- thank you so much for pointing us in the right direction!)

To help manage the headaches, I have been taking him to my chiropractor who I love and swear by. I started going after having my first baby 10 years ago and never stopped through 3 more kids for chronic back pain -- which is gone -- as well as the regular pulls and pains of my busy life. He is not treating the concussion, rather making sure his spine is aligned and working to loosen the area at the top of his spine at the bottom of his neck. He is using laser therapy and massage. I can't say that it definitely makes a difference or that it will in the long run. I do know that it is not hurting anything and that my son feels good when he's there. Last week, his good days seemed to coincide with those appointments, but that could be just a coincidence. It's covered by my insurance, and the $25 co-pay is well worth the hour of respite. We are also seeing an occupational therapist who practices cranial psychotherapy. She is doing "pressure points" and "zero balancing" with him. Something about relaxing the sutchers (spelling?) and jump starting his brain into healing itself...I'm not completely sold, but it's the same scenario with the chiropractor -- he likes going and it seems to help.

Just one more thing -- you are your only advocate. Sounds like you've fallen through the cracks more than once. I write down everything the doctors tell me (mostly so I can remember what to share with my husband), I journal my son's condition, and I go in to my appointments armed with a list of questions. I've also made friends (they may not agree since I'm a pest!) with the admins in my doctor's offices -- they know best how things work. We have been extremely dissapointed in Children's Hospital. They have the resources that we need, but it has taken way too long to figure that out, and the appointments we need are booking about 4 weeks out. Unacceptable to us, so we've gone elsewhere, even though it's been a struggle to figure out where and sort all the insurance stuff out.

I wish for good days ahead for you.

sbosco,
You are still early in the healing phase. I am glad you are going to Dr. McGrath, he will help you plan ahead and keep you calm. I also brought my son to a chiropracter but he thought he was getting worse, so I stopped. He was already going there prior to his head injury, so we continued with the appts. Im sure these appts. are fine and may be helping. Anything that keeps him calm will be helpful. He is young, so do not worry about school. He will be able to catch up, even if it means making up over the summer. I am confident, that he will get better. One thing I have learned is the brain takes awhile to heal, unlike bones etc, but it will heal. I also remember when we were at your stage, that I could not be told enough, the words from others, that he will get better. He will get better! He is young, early in his injury and has not had that many prior injuries. I am sure Dr. Cantu will tell you that you will see improvement in three months. Remain hopeful, many others have made full recoverys. Take care and stay in touch.

Interesting Link Lynlee

Cerebrospinal Fluid Technique-The Flow

Take Care Jeffn