this is the first time ive heard anyone else besides myself describe these types of symptoms. ive had about 11 concussions. the first one that caused pcs was in 2001. it took about 5 years before i was able to run again but eventually i could without problems. now im back in the same boat. i suffered 3 concussions in iraq from roadside bombs, all within 2 months of each other. now i cant do anything "high impact" like running, jumping, contact sports..
docs dont know anything. it feels like my brains loose inside my head and any quick movement or shaking of my head will give me another concussion. im wondering if my problem might be in my brainstem since it feels like my brains just sloshing around inside my skull.. any one know anything about brainstem injuries?? all ct, mri scans ive had have been normal. just curious..

Sorry to hear your situation - it's a tough one and a lot of us here on this board can relate. I appreciated your description (feels like my brains are loose in my head) as I've had difficulty trying to express how this symptom feels. To me, it's like when an elevator stops to quickly, and you get a little "butterfly" in your head...very weird sensation. Not vertigo, not really dizziness, but like you said, like our brains are loose.

I saw a really good vestibular physiotherapist who deals with balance and she explained that when we injure our brains, the information input from our eyes and ears to our injured brain isn't interpreted like it used to be (before injury). And our sense of where we are in space is off. I have been doing "habituation exercises" to retrain my brain where I am, and this is helping, although very slowly. And if I overdue anything, especially driving or being in a moving vehicle too long, this particular symptom comes back with a vengence. I literally have to spend more time resting, with quiet and no visual stimulation, for it to calm down.

Good luck,
MargN

Hi - I feel the same that my brain is loose in my head. I have often joked about needing a stabilizer like a ship. I have been into fast long walks lately and 2x in this last month I have ended up with major headaches and vomitting and then the inevitable jabs in the you know where. I now know for certain that I have to be very very careful about the level of physical exercise I do.

Since purchasing my "black box" which reduces back ground noise I have found the car a lot better as a passenger but sudden bounces or jerky corners give me a headache.

Lynlee

Hi there agntornge. I see that you're new to NeuroTalk so I wanted to extend a welcome to you. 11 concussions is an awful lot of head injuries to go through. I'm sorry that you had all this happen to you.

I went through one nasty head injury with ensuing Post Concussion Syndrome, but mine seems so darn trivial to what you went through.

It's good however to know that you found your way here to this forum. There are a whole heap of wonderful people here.

Welcome again. Please make yourself at home.

thanks for the welcoming koala. yea i see there are plenty of people here in a similar situation. that makes me feel good. not to see that all these people have to go through this but that there are people out there i can relate to. i know dealing with this sucks.. and im sorry everyone has to deal it with. for those who were just recently injured going through this for the first time, just know that it does get better. time is really the only thing that helps. try not to let your emotions get the better of u. i know it can be hard but itll only make things worse. you will get better..
good luck.