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Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS). |
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#1 | |||
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Legendary
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Hello Copper. I'm so pleased you found your way here. I too suffered from PCS after an accident some years back so I have some idea of what you might be going through.
Have a look at the other links that Abasaki kindly added, and don't be afraid to ask if there's anything we might be able to help you with. ![]()
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Eastern Australian Daylight Savings Time and my temperature . |
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#2 | ||
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Member
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Hi Copper,
I feel so sorry for you. I was so pleased to have found this site last year as well. I had spent 6 years struggling for some understanding of my condiition prior to that. Being told that you look good does not help either!! Your symptons are exactly the same as mine. Nothing can prepare you for the changes that you need to make to be able to cope with your day to day existence. The noise and crowd one is big as that can prevent going out for dinner, a drink etc and effects so much in the way of family activity. I would reccomend that you include your wife in everything concerning your head injury - take herwith you to all appointments etc. I made the mistake of shutting my husband out - but I now realise that that was me not being rational due to the head injury and we ended up divorced. He still does not believe the effects of the bangs to my head. In 2001 I hit my head on a hanging basket and about 6 weeks afterwards hit my head on the door frame of a taxi when getting into it with an arm full of files. Since then I too have been rear ended in my car, fallen down stairs, hit my head again getting into a different car and on and on. Balance does not help! I have only worked part time since the 2001 injuries, I did get back to 6 hours at one stage but was then rear ended and went back to about 3 hours per day. It is a constant battle with tiredness and as soon as I am tired all the symptons get worse. I firmly believe and you will find that I have said this several times on this site that how your are treated etc in the initial months has a huge outcome on your recovery. I kept trying to work full time and it was terrible. You need to avoid ALL stress, rest BEFORE you get tired and limit noise and stimulation - do not force yourself to do anything or do anything if you don't feel like it. It is like the reversal of that you are used to doing and you have to get over thinking that you are lazy - it is not easy! Not exercising is awful, I can no longer play tennis etc and walk now. Pushing yourself also brings on headaches - which I had to find out the hard way of course. Doing anything with my head down also gives me a headache and makes me fall over. Noise is shocking bordering on painful and feels like it sucks my energy out of me. In short it feels like everything I do takes 10x the energy that it used to. I think that is why I used to eat more - I gained weight as well more food as for a short time it feels like you have gained some energy - at the moment I am walking an hour a day and have lost all that I gained - thank goodness - gaining weight does not help the depression part of it. The depression is very common with head injury - initially I thought that I was weak for becoming depressed but with pcs head injury it seems to go hand in hand. Gosh I hope that I haven't made you feel worse - but it is wonderful knowing that there are others the same. I would prefer to have broken bones etc as well as at least there is something to show for it! Lynlee Melek - I should have said all this to you as well. Last edited by Lucy; 04-15-2008 at 09:29 PM. Reason: add |
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#3 | |||
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Senior Member
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So very sorry Copper to hear of your wreck. I blacked out and hit the rear end of another car, which thankfully did not hurt them or mess up their car. Messed up mine though and gave me my mild brain damage. Now I can't drive anymore either, I can do fine near home since it is just a right turn then one more right...reverse coming back. Still get confused in lots of traffic or big intersection. UGH, at 65 probably will not ever get back to driving more than the little not quite 3 miles from my house to a walmart or general dollar.
Hate this has happened to a young person like yourself and pray you will heal competely. The pcs does change your personality quite a bit. I still have some meltdowns if too much stress or get tired. Take it easy and rest alot...just don't push yourself to much. Gaye ![]() |
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#4 | |||
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Wisest Elder Ever
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Hi Copper.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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