Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 03-16-2009, 10:32 AM #11
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Default plugged ears

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Originally Posted by blackcompe View Post
Hi! I suffered a concussion about four years ago and ever since then my ears have become completely plugged as if I was under water. Its worse than it sounds because there's head tension pain accompanying it. I sometimes get dizzy. I want to say its tinnitus, but I haven't read much about pain being a symptom of it. There is a 'crunching' or 'crackling' noise in my ears.

Its constant too, my ears haven't unplugged in four years. I've had to drop out of college and claim disability. I'm so fatigued and in pain that I'm am debating shock therapy. I hoping someone may experienced this and has knowledge on a medication to treat it. I've already been to ear specialists. Any help would be appreciated.
Yes, I have this after 9 years from Tramatic Brain Injury. But it has subsided a bit through the years. It hurts to even type on this keyboard at times, can't chew food without it drivin me crazy, forget talking

Silence hurts, noise hurts, sometimes pain killers make it worse. BUT, I am fortunate that mine has declined over the years. Could be that I changed my diet completely........ALL Organic, all raw foods that I process myself.

Was it the time, or the diet change? who knows...but I will take the improvement! I can say that last week I was TOTALLY STUPID & ate 6 Krispy Creme doughnuts & ALL problems came back for 2 days straight???

I do hope & pray for you that you will get the relief that you need!
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Old 03-16-2009, 12:18 PM #12
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Default Gabapentin has worked for me

I am on Gabapentin (Neurontin) to relieve me of the jaw clenching and other muscle tension problems I am having. It is a very easy drug to take. No real side effects.
It is an adjunct anti-epileptic. It effects GABA in a positive way.

Has anybody done a "good" look at your neck? The vertebral artery is known to cause problems with the eighth cranial nerve that connects to the ear. One of the articles refers to 0.3 millimeter slices needed for the MRI to image the problem.

Do a google for "cranial nerves, vertebra" You will find some good information.

I have a problem with inflammation in the brain stem causing problems. For me, it effects the autonomic nervous system and causes me to stop breathing.

Maybe you have a problem in the neck too.

Good luck with this problem.
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Old 03-20-2009, 08:28 PM #13
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Originally Posted by Mark in Idaho View Post
I am on Gabapentin (Neurontin) to relieve me of the jaw clenching and other muscle tension problems I am having. It is a very easy drug to take. No real side effects.
It is an adjunct anti-epileptic. It effects GABA in a positive way.

Has anybody done a "good" look at your neck? The vertebral artery is known to cause problems with the eighth cranial nerve that connects to the ear. One of the articles refers to 0.3 millimeter slices needed for the MRI to image the problem.

Do a google for "cranial nerves, vertebra" You will find some good information.

I have a problem with inflammation in the brain stem causing problems. For me, it effects the autonomic nervous system and causes me to stop breathing.

Maybe you have a problem in the neck too.

Good luck with this problem.
Ah, that's good to know. I seen my neurologist and I definitely don't have Myoclonus. Although my Eustachian tubes are abnormal I don't have constant twitching. They questioned PCS but didn't come to a conclusion. They offered me Ambien?!?!!? I haven't had any luck with immetrex either. I had some CT scan slices taken today. They said a CT scan can pick on tissue abnormalities as well as bone fractures and such.

It gets better.... I suffered a massive allergy attack a few days after my head injury and that is when the ear problems started. I had severe conjunctivitis which I had treated immediately. I tried and tried to get help from ENT's and they've done a lot of help, but still no results. Its really hard to believe an allergy attack could causes ones ear to plug for four years straight plus cause constant headaches, fatigue, etc.

I'll keep you updated.
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Old 03-20-2009, 08:44 PM #14
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Quote:
Originally Posted by Mark in Idaho View Post
I am on Gabapentin (Neurontin) to relieve me of the jaw clenching and other muscle tension problems I am having. It is a very easy drug to take. No real side effects.
It is an adjunct anti-epileptic. It effects GABA in a positive way.

Has anybody done a "good" look at your neck? The vertebral artery is known to cause problems with the eighth cranial nerve that connects to the ear. One of the articles refers to 0.3 millimeter slices needed for the MRI to image the problem.

Do a google for "cranial nerves, vertebra" You will find some good information.

I have a problem with inflammation in the brain stem causing problems. For me, it effects the autonomic nervous system and causes me to stop breathing.

Maybe you have a problem in the neck too.

Good luck with this problem.
My neck is actually bright red. Very bright. Its very noticeable. I really don't know who to ask about that. The neurologist may have noticed it, but she didn't say anything. That might be the key.
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Old 03-25-2009, 02:09 PM #15
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CT Scan showed nothing. Back to the ENT .....
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Old 04-03-2009, 07:21 AM #16
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ENT found nothing...........ECT is my last hope.
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Old 04-03-2009, 01:22 PM #17
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Default Infection?

Have you tried consulting an infectious disease specialist? Sometimes, an infection can fester for ages without an ear infection sensation. There are bacteria that are common in the mouth and throat that do not belong up in the Eustachian tubes. Maybe the sneeze pushed something up that does not belong there.

Just a wild thought. ECT sounds scary and permanent.
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Old 05-09-2009, 10:36 AM #18
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Unhappy Still looking for the cause

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Originally Posted by blackcompe View Post
I actually had many visits with world renowned otolaryngoligists, and they were totally puzzled. One of one was a friend of a friend. So, you can tell this isn't easy. On a better note, I found some articles online this week talking about several types of Tinnitus (even painful ones) and some partially effective treatments. And, I found out Tinnitus is common after a head injury and the symptoms match up. Too bad ENT's can't see that after 8 years of hitting the books.

I don't know if I mentioned this earlier, but I am only 23, on disability, and in major debt from college. I had to leave college because this condition is so debilitating. I've been dealing with a 4 year long headache from plugged ears. Its been hell trying to diagnose myself and order/ask for different medications to try. Everyone gives me ****, but I'm still dealing with the problem, so how can you blame me. We pay Doctors to fix our health issues.

I have appointment with The Neurology Department of The University of Pennsylvania Monday. I am not that hopeful, anxious if anything, but hopefully I can get a script for Baclofen. Its a anti-spasmylotic agent that shows efficacy in treating tinnitus. It un-contracts contracted muscles through the modulation of GABA nuerons. Its also used to treat multiple sclerosis. Its likely that my head injury caused a slight disruption in my CNS, and my ears muscles are highly spastic.

I'll post if it works. I would never want anyone to live through this, if I can help it.
Blackcombe

I had a fall on new years day because I had a hypoglycaemic attack being diabetic, I hit the upper left side of my head which left a laceration. 2 days later coupled with the anxiety, depression a pulsating hiss started in my right ear which one night turned into a loud ringing for a short time, with the blocked plugged feeling in the ears. Since then I've been to ENT specialists, they found not fault even though they only done a hearing test, the doctors but they wont refer me for an MRI, Accupuncture not much use, cranial osteopathy only once but I felt it helped a bit, reflexology good but too many adverse reactions. Like yourself for the first few months you may have had sleep disturbances and noise sensitivity. At the moment I'm having Cosmodic Therapy/Scenar treatment. Which has reduced the tinnitus to being very faint, but there is still that horrible blocked feeling in the ears. At the start of the week my right ear got inflamed which magnified the tinnitus so the doctor gave me some drops which so far have helped in the noise reduction but the tender blocked pain is still there. Throughout February - April I went through periods where I felt suicidal believe me. And doctors still wont refer me for an MRI, so in the middle of the week I went to another surgery asked fro some forms to register as a new patient, after being a patient at my current surgery for nearly 30 years. I felt different after my head injury for a few months only recently is my old self starting to reimurge. I understand what you're going through. I'm just assuming it's PCS Post Concussion Syndrome or is it TMJ disorder?? I haven't had any help at all, I haven't been diagnosed. No good treating the symptom until you find the cause or fault. My cosmodic therapist says the problem is coming from the ears?? and it's gradually healing. I do not want to experience another head injury, didn't realise the symptoms can be so debilitating and make you miserable, my energy levels have been affected too.
I'm going to see a top well known 'spiritual healer' soon. I've had spiritual healing before and it has helped on a number of occassions.
Hope my new doctor will be more supportive and refer me.

Billy
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Old 09-27-2009, 08:32 PM #19
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Quote:
Originally Posted by gardengrl View Post
Yes, I have this after 9 years from Tramatic Brain Injury. But it has subsided a bit through the years. It hurts to even type on this keyboard at times, can't chew food without it drivin me crazy, forget talking

Silence hurts, noise hurts, sometimes pain killers make it worse. BUT, I am fortunate that mine has declined over the years. Could be that I changed my diet completely........ALL Organic, all raw foods that I process myself.

Was it the time, or the diet change? who knows...but I will take the improvement! I can say that last week I was TOTALLY STUPID & ate 6 Krispy Creme doughnuts & ALL problems came back for 2 days straight???

I do hope & pray for you that you will get the relief that you need!
Have you ever done any research on Hyperacusis? I have a very similar problem with sound sensitivity brain injury. There is some treatment for it that apparently has an 80-90% success rate. I'm actually about to begin treatment myself.

Check out **
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Old 09-27-2009, 08:34 PM #20
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Quote:
Originally Posted by blackcompe View Post
Hi! I suffered a concussion about four years ago and ever since then my ears have become completely plugged as if I was under water. Its worse than it sounds because there's head tension pain accompanying it. I sometimes get dizzy. I want to say its tinnitus, but I haven't read much about pain being a symptom of it. There is a 'crunching' or 'crackling' noise in my ears.

Its constant too, my ears haven't unplugged in four years. I've had to drop out of college and claim disability. I'm so fatigued and in pain that I'm am debating shock therapy. I hoping someone may experienced this and has knowledge on a medication to treat it. I've already been to ear specialists. Any help would be appreciated.
Not sure if it will help you, but tinnitus and 'fullness' in the ears are both symptoms of hyperacusis.
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