NeuroTalk Support Groups - My updates as well as new findings that may help others

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Traumatic Brain Injury and Post Concussion Syndrome (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/)

- - My updates as well as new findings that may help others (https://www.neurotalk.org/traumatic-brain-injury-and-post-concussion-syndrome/82062-updates-findings-help.html)

and for a chuckle check out my taurine levels
I find when im kinda down or having a difficult time concentrating I take an energy drink and it helps my vision mostly... but lol my level is through the roof

Mikeyy,

My adrenal test came back similar to yours, but my doc said to wait on treating it to see what the travacor and Balance D does. Can you please tell me what two supplements he put you on to help with your adrenal gland? I feel that mine is also fatigued and I might also have thyroid issues. Thanks.

Quote:

Originally Posted by Mikeyy (Post 484759)

Ive been suffering from PCS/TBI for 2 years, 2 months and 22 days.
Its an easy day for me to remember for 2 reasons, one it was new years eve and 2 it was the day my life changed forever.

To give you a brief summary I have probably had a dozen concussions from hockey, and other such activities. The most recent I received dec 28th, 2006. I was unaware of my concussion however even if I had been it probably wouldnt have changed my actions over the next couple of days. Dec 30th I took off for Mexico to celebrate new years. Upon arrival in mex I felt fine, went to bed and Dec 31st I woke up feeling as what I can describe as awaking in a dream.

Nevertheless my condition worsened in Mexico. The flight clearly took its toll on me. Once I arrived back home in Vancouver, BC I went to see my GP doctor, a clinic doctor blah blah blah all useless. I paid for a private MRI, had an EEG done, all the tests you can imagine with no luck.

Nov 17th 2007 I went to my chiropractor who had treated me for my groin injury and essentially broke down in his office. After about 5 questions he immediately said yes you have PCS and we started treatment instantly. Ironically enough im now good friends with him and we play hockey together, lol go figure. HE has helped me immensly with just his treatment as well as the laser therapy.

Later I went to a PROLOTHERAPIST who did also some minor adjustments, as well as some prolo injections in my neck. Now this is where it gets good

IF YOU'RE LAZY READ FROM HERE ON
Judging by my symptoms the Prolotherapist said to me he felt that my chiropractor had "fixed" my concussion issues, but my body had become chemically unbalanced as a result of trying to deal with a brain injury with no help for 11 months and asked me to take as NEUROSCIENCE TEST. https://www.neurorelief.com/ I did so and the results came back just as he had thought. I was suffering from Adrenal Fatigue and borderline adrenal burnout. He issued me 2 natural supplements which I have been taking for about 10 days and I can say that I am almost 100% symptom free. I cannot tell you how good it feels. Once I stop thinking about what ive gone through for the past 2 years im certain I will return to my old - self, although im having a hard time remembering what thats like.

I guess what you want to try to keep in mind is that even though you have suffered a concussion or TBI there is a possibility that once the brain is lets say "Fixed" the rest of your body has also taken a beating and needs to be "repaired" as well...

I definately suggest for everyone to take this test, its very inexpensive, and even if this isnt your only problem its a good way to see how your body levels are. - My results are at the bottom.

If you are in the vancouver area, or visiting for the olympics or just tired of lousy doctors in your area im going to recommend 2 doctors.

Dr Stefan Sigalet - 604-524-4959 "chiropractor" however to me hes capable of much more, he works on several of the Vancouver Canucks, several NHL players have flown in to see him, Todd Bertuzzi was supposed to be out for the season and visited Dr Stefan and was back on the ice 2 weeks later.

Dr Albert Kim - 604-433-0100 "Prolotherapist" his knowledge and explanations of everything put me at ease everytime I go visit him. since his help with my TBI ive had him help me with my knees, hip, neck and next visit my back... all relatively minor injuries but by dealing with them now im sure I will be in better shape as I age.

Here are my neurotest results so you can see how they look.
**I hope that this might help some of you, of course everyones case differs a lot this just worked out best for me. Good luck to all if you have any questions about how this was for me feel free to ask**

One other point I wanted to make was I asked the doctor why it was when I drank it caused me to feel more normal, im not a drinker at all, ill drink 2 times a month if that, but when I did and I was at my worst it made me feel more normal. He informed me this is due to the fact that alcohol contains dopamine and thats part of phase II of the neuroscience recovery

Good luck

Can you elaborate more? I also experience vision problems and have high taurine levels. Thanks.

Quote:

Originally Posted by Mikeyy (Post 561829)

Quote:

Originally Posted by mhr4 (Post 562012)

Can you elaborate more? I also experience vision problems and have high taurine levels. Thanks.

I was taking Adrecor or advacor for the adrenals before but since my adrenals have come back to the normal level so I stopped taking it

Im currently on balance d and travacor

my vision problem isnt a problem of 20/20 or anything it just feels like what Im seeing isnt as ... jeez the wording is hard to describe, like what I see im not full interpreting, ill overlook things all the time, or my concentration is on the wrong thing,.... I dunno, it always feels like somethings effecting my vision it sucks... im assuming the epinephrine doesnt help...

when I wake up early or dont sleep enuf my vision really suffers in that sense... thats how I can tell im tired

Hey Mikeyy,

What you said about your vision and interpretation interested me. I don't seem to see/understand what's on the left side of forms, etc...

If an application is just straight up and down, I can fill it in. If it's a single sheet, but asking for different information on the left and right side, I can't do it - no matter how many times I try. Although I searched and searched, I couldn't figure out how to start a new thread here until another forum member pointed out kindly, that all I had to do was click on the little button on (you guessed it) the upper left side of the screen. Wierd.

I also get the sensation that the things I'm looking at are quivering.

Cheers

thats definately interesting

I remember in the first 4 months I went to see an eye specialist, did all the tests and my vision checked out fine, I want to go see a neurologist, there must be damage to part of my brain of which controls vision, would be nice to know if theres anything I can do to fix it... maybe I dont wanna find out :(

But my vision is the one factor that really makes me aware that somethings wrong with me, if I close my eyes, I cant tell anything is wrong

Yeah, my vision is fine, too. It's a processing issue. Have you had a neuro-psych to evaluate your brain function? It would be intersting to know what your occipital lobe is up to.

Quote:

Originally Posted by Hockey (Post 562296)

Yeah, my vision is fine, too. It's a processing issue. Have you had a neuro-psych to evaluate your brain function? It would be intersting to know what your occipital lobe is up to.

I havent and im actually wanting to do it but am nervous about the results

Excuse my arrogance but how is it conducted?

The neuro-psych is painless, but exhausting.

You'll meet with your neuro-psychologist and do a series of tests (verbal, written, motor skills) that are designed to see how your brain is actually functioning.

In advance of your appointment, he/she will want all of your medical records, educational transcripts and letters from employers and friends to try and get a clear picture of pre-morbid you that can serve as a baseline and determine which tests would be most appropriate.

You will also have a long pre-interview where the neuro-psychologist will ask you questions about yourself, your injury, etc... They like also to talk to a close family member or friend to help get a more complete picture. (For example, I had no idea that I constantly repeated myself until my husband said it and all my friends mentioned it in their letters.)

The testing is usually done over the course of one long day. However, they can break it up if that proves too tiring for you.

Most of the time you will get your results in about two weeks. The neuro-psychologist will call you and a family member (if you want) in for a long discussion about your results and make any treatment suggestions. You will also get a written report.

I understand your fear about getting neuro-psych feedback. However, it's not as bad as you might imagine. Frankly, it's not that you don't know something is wrong. During the testing, you may find, as I did, that there are tasks you can't do at all. And, of course, you've seen your MRI and live with your deficits every day. So, in short, while the specifics and extent might surprise you, the news that you have brain damage isn't news at all.

In a funny way, listening to my neuro-psych was a relief. Finally someone understood how I was thinking and feeling and behaving and could explain to me exactly why I was thinking, feeling and behaving that way. Before that, I thought I was going nuts.

The neuro-psych also helped target my cognitive therapy and got me access to some of the support services I obviously needed.

Try not to be afraid. If you need to talk, before or after your neuro-psych, feel free to send me a private message. As much as it sometimes feels that way - you're not alone.
Cheers

thx hockey appreciate it!

I know im not alone and thats why I love coming here, I just feel that if I found out a certain part of my brain was damaged beyond repair that id find that a big downfall, but then again I suppose Id have to learn how to live with it as apposed to hoping it would get better.

I think it would be great to hear what others have to say, I already called a few of my closer friends and they said they'd love to help.. would be interesting to hear how ive changed :confused:

Im going to try to get a good neuro psych out here, does anyone know of any good ones in the Vancouver area?