Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).


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Old 04-11-2009, 07:30 PM #11
nikkicoop nikkicoop is offline
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Wink Acupuncture helps!!

Acupuncture really helped me with relaxing my muscles in my neck and back. It was great!! I did try a chiropractor first, but he just gave me lower back pain which I now cant get rid of!!

I first tried getting a relaxing massage, but I just lay there the whole time worried that something had happened to my children and they cant get hold of me - part of PCS!! So that was no good.

Nikki
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vini (04-22-2009)

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Old 04-20-2009, 12:54 AM #12
Silent2 Silent2 is offline
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Hi,

The people who are minimizing your problems have obviously never had a concussion. I am sorry this is happening to you. Be sure to state and stand on your truth. Don't let them convince you the problem is "you". It's not.

The elavil will really help you. It's an excellent medication. Also, if you have a pdoc or GP, talk to him or her about something extra to help with the panic. I have Panic Disorder and I know how hard it is to deal with a brain injury and the resulting panic. It's not fun at all.

If I can be of help, just let me know.

Best,

Silent2


Quote:
Originally Posted by Mark in Idaho View Post
Those that try to minimize your symptoms because it was "only a screen door" or "only a cupboard" are fortunate they have never experienced what we have experienced.

I got the same symptoms from riding a tilt-a-whirl when I was just a kid. I knew what caused it but knew that I could not explain it so I didn't.

Now, after a few more concussions, I can get a concussion from shaking my head "no."

Believe us, we know what you are going through. If the doctor dismisses you, dismiss the doctor.

Some on this board report good results with a very low dose (10 mg) of Amiltryptilline (Elavil). It is an off label use but the small dose lowers the risk.
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Old 04-21-2009, 12:36 PM #13
benjamin benjamin is offline
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The anxiety disorder you were living with prior to the injury is probably the biggest factor in causing you to develop PCS. I experienced panic attacks and was dealing with various kinds of low level mental 'wrongness' before my concussion a year ago and I was so struck with anxiety for the months after it that i couldn't do anything. I lost everything. My most distressing symptom was depersonalization (and derealization). But I got better and you will too I'm sure. The knock on the head has sent your brain a bit haywire and stirred up all the bad things that it was perhaps keeping at bay....it's not damaged or faulty....and you'll be ok once you work your way through.
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vini (04-22-2009)
Old 04-24-2009, 02:00 PM #14
Sissy Sissy is offline
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Default Elavil

Quote:
Originally Posted by jbanash View Post
Well, I tried the Elavil and it knocked out my headache immediately--I slept for 14 hrs though! I felt like MYSELF for the next two days without taking it, so my dr. told me to discontinue. Yesterday I felt good all day, but progressively started to get fuzzier and fuzzier as the day went on. Today, I felt like I was right back a square one, and I could hardly function. My head hurts where I hit it (over my left eye), and I'm confused and very emotional. I'm so tired of this, so tired of being scared that something is REALLY wrong with me. Am sobbing as I type this. I don't know how much more of this I can take. Am wondering if I did something to hurt my sinus on my left side when I hit my head, as there is a lot of pressure there that worsens when I lie down, and pain behind my eye. I just feel like I have no options and nowhere to turn for help. My dr. doesn't know how to help me, and now wants me to have an EEG. I have no idea how I'm going to get through work tomorrow, and I feel so completely alone and scared. Some kind words would mean a lot to me right now.
Hi, I'm so sorry that you have to deal with PCS. I would urge you to try the elavil. I am still taking it after my accident in May '07. It took about two weeks to work for me when I first started it in Dec. 07. I did get nauseous and was drousy in the beginning, but it did not made my headaches any worse and after about 2 1/2 weeks I finally started to feel better. Also, I did not gain any weight - I guess I am one of the lucky ones who does not feel like eating on this med. I feel like it was a lifesaver for me - thought I was losing my mind getting up with headaches ever morning. I still have some mild issues with my head, but overall life is good!

With a lot of patience you will get better too - it takes time to heal.

P.S. What dosage are you on? I started on 10 mg and went up to 20 after about three weeks. Now I am taking 10 mg again for Shingles pain.
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