Before read my history, know that over 90% of people with PCS recover. I am one of the unfortunate 10%. This month will be my 11th year dealing with PCS. Believe me, I am much better than the first few years. Just have to stay away from the triggers for my symptoms. Anyway, since I've had such a long history with it, I think I can share a few thoughts.

When you are going through a day like you described it is very isolating. No one who hasn't experienced it will not understand. They will try and try to make you feel better but the experience is so unlike anything others have been through. I know what you are feeling. PSC is so horrible - yet no test will show anything is wrong. So as long as you find a good neurologist and get all your tests done...I've had them all...know that you will be OK. The symptoms do mean something is wrong - you have PCS. But try your best to relax. Get plenty of rest and be good to yourself. I am now on Cymbalta. It does not knock me out, but is supposed to give you more energy. My symptoms occur much less than before. I don't think it is a popular anti-depressant to use for PCS, but it just happened to work well for me. If that doesn't work try something else. Accupuncture, craniosacral therapy, massage. Something will help. In the meantime, know that you are not alone, you are not going crazy, and that something will help you.