Traumatic Brain Injury and Post Concussion Syndrome For traumatic brain injury (TBI) and post concussion syndrome (PCS).

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Old 08-06-2009, 11:12 PM #1
MargN MargN is offline
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Hi..haven't been to this board in months and doing well. Your question got my attention as working out was an important part of my recovery measurement - that is, can I work out the same way I did before?

After several failed attempts on my own to get back to working out, I finally signed on with an agency that helped me surrender to what I needed to do. And that was basically, start over and go slow. Like a stroke victim that needs to relearn certain things, I found my brain needed to relearn how to cope with workouts again (increased vascular activity and balance were the big issues for me). I started VERY slowly with cardio and weights, increased VERY slowly and always stopped at any sign of headache. It took several months, but I am now pretty much back to the level I was at before.

I can't stress enough that you have to surrender to healing and coming back slowly to things you did before. Every time you push to hard, you start over. That was a tough lesson for me. Even now, I have to watch it - just like most of the posters on this board. Good luck.


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Originally Posted by StuckinBoston View Post
I suffered a severe TBI about 3 years ago. Bleeding on the right side and SDH. Overall I am doing well but can't seem to get back physically. I didn't have any paralysis just some left side weakness that cleared within a couple of months.

I tried to get back to my running routine that I was doing before my accident 3-5 miles a day but I can barely run a half mile before I get hit with headaches and trouble catching my breath. Have seen many doctors and they don't have a clue. I just can't build up any stamina. Does anyone know why? Again we are 3 years out from my accident so I would think my brain has healed. I also read where others are running and almost back to "normal". I want to be that way too. I am only 23 years old but feel like I am 63 with all the body and headaches.

I do stay well hydrated and I know this is very important to help with the headaches. I had asked that the doctors do some blood work and the only thing was that my vitamin levels could be better. My vitamin D was marked low so I will supplement for that. But doctor said it really doesn't explain why physically I struggle to get back to the form I was.

Any suggestions would be appreciated.

Stuck in Boston
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Old 08-07-2009, 07:17 PM #2
StuckinBoston StuckinBoston is offline
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Quote:
Originally Posted by MargN View Post
Hi..haven't been to this board in months and doing well. Your question got my attention as working out was an important part of my recovery measurement - that is, can I work out the same way I did before?
That is exactly where I am at...can I do the things now as before. Exercising is the last piece of the puzzle but seems to be the hardest piece to make fit. Like you said, if I push to far I can be set back days - if I don't push myself I feel that I am not getting any benefit from the exercise. Which then just triggers my frustration level.

Got a call earlier this week and the new neurologist can see me sooner. Really don't think he is going to have anymore insight but will try one more, then I am done with doctors.
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Old 08-26-2009, 07:17 PM #3
StuckinBoston StuckinBoston is offline
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Just wanted to let you know that doctor wanted to test cortisol levels and mine came back low. He said that could be why I was struggling to exercise. Anyway need to go back and have another test and then decide from there.

Have not really been feeling very well with fatigue, nausea, lightheaded that is why he wanted some more blood work. Also my vitamin d has dropped again so looking to add a higher dose.
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Old 08-28-2009, 11:51 PM #4
Mark in Idaho Mark in Idaho is offline
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Mark in Idaho Mark in Idaho is offline
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StuckinBoston,

Re: Vitamin D,

Has your doctor told you that you need to increase your Vit D for months before it starts to show a difference.

Just FYI
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Old 08-29-2009, 07:33 PM #5
StuckinBoston StuckinBoston is offline
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Mark they didn't really tell me what dose to go to - just increase. I didn't get the impression that they were overly concern about vit.d. More that this was an observation from the blood work being marked low.

I have gone up to 5000.

Mark or anyone else do you know anything about stim test results? It looks like my adrenal glands might be struggling but drs. seem to think they are OK. After the stim test there was basically no reaction from the adrenal glands to the stimulation. Dr. said that was OK because the cortisol level was high to begin with.

Doesn't sound right to me...
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