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Old 01-07-2007, 05:25 PM #1
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DO NOT CUT THE FACIAL NERVE!!!!!!!!!!!!!!!! Reasearch phantom pain and loss of faceial muscles and not being able to use tounge is a danger also. please get more information before you do anything.
I am sorry I never had a chance for anything like an m.v.d. or nerve block or anything. i think jen helped you with another place to ask this ? keep us posted please . youll be in my prayers .

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Old 01-08-2007, 02:22 PM #2
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NO! Never cut the facial nerve!~! via any procedure. Some doctors do radio frequency Rhizotomy and I know of three ladies that are on total disability now from that procedure. They ended up with something called Anesthesia Delorosa and are in bad shape. I know of two that had this done but they went to the very best in the country. (this was 6 years ago and I am not sure if these docs have retired or not).

With MVD...one needs to have this done with a Neurosurgeon that has done this procedure in his/her sleep. I would rather forgo any prodcure than go to someone who has not done hundreds with a high success rate. I only know of a handful of surgeons that "I" would chose if "I" were having MVD and not sure if they have retired.

I had a nerve cut and ended up with RSD and bedridden for 6 years. No picnic.
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Old 01-09-2007, 08:27 AM #3
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Lisa what is rsd??? sorry but would like to know if-en ya dont mind???
thanks I got anesthesia dolorosa and really could be in worse shape then I am . thank heavens for neuro stim.
Thanks for filling me in on RSD. best regards.
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Old 01-09-2007, 05:35 PM #4
LisaL-TOS LisaL-TOS is offline
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Hi BurntMarshmellow,

RSD is Reflex Sympathetic Dystrophy. It is also called Causalgia, CRPS. Neurotalk has a Thread for RSD. There is so much about RSD that one can do a Googlesearch on this. It is a terrible thing to have but if diagnosed early and treated ..this lessens the morbidity of this disease. I was not diagnosed early.
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Old 01-09-2007, 07:14 PM #5
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I hope that your surgery went well and you're recovering comfortably! Please update us once you're feeling better!

*hugs*
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Old 01-11-2007, 10:04 AM #6
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you have been in my prayers for a good results with the m.v.d.
I hope everyhting went well and that you are healing and recovering slowly BUT SURELY!!!! Please let us know how You are. many blessings question
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Old 01-24-2007, 01:06 PM #7
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My surgery itself went fine. My surgeon found that scar tissue from my first surgery was pulling the nerve up and thus made another vessel touch the nerve. My facial nerve was not cut during surgery - but I still have developed some numbness and tingling in the left side of my tongue and part of the left side of my face. Three days after I was discharged from the hospital I had to be readmitted due to the fact that my incision was infected. They had to open up over half of my incision to clean it out. It is still open and I now have to have a nurse come out to my house two times a day to pack the open incision and put a new dressing out. Yesterday I had some pain behind my left eye - but otherwise there have just been some twinges of pain in the left side of my face.
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