Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-13-2009, 06:39 PM #2
mean laureen mean laureen is offline
Junior Member
 
Join Date: Sep 2009
Location: Madison, Ohio
Posts: 42
15 yr Member
mean laureen mean laureen is offline
Junior Member
 
Join Date: Sep 2009
Location: Madison, Ohio
Posts: 42
15 yr Member
Smile

Hi Saffie. This is also my very first time to post anything on this site. Your message caught my eye because I just turned 39 and can relate to you. I have been dealing with this terrible condition for about 2 years but it got really bad for me this past year. I was in and out of the hospital 4 different times in May and June. In May I had the gamma knife procedure done. I felt good for about 2 weeks and then it started again. On June 19th I had a microvascular decompression surgery done. The surgeon found that I had large veins compressing my nerve and he removed them. I felt wonderful as soon as I awoke from the surgery (as far as the pain in my face) went. I am still doing wonderful. I had a flare up of the pain about 8 weeks after surgery but the surgeon thinks I was weaning myself off of my medication to fast. It really scared the heck out of me though and I still worry every day that it might come back. I'm still trying to wean myself off of the medication but I'm taking it super slow. I'm still taking 1000mg tegretol, 2100mg neurontin and 200mg dilantin a day. What would be causing the inflammation that the doctor sees on your MRI? Did they say? How long have you been dealing with tn? Mine is in the third branch of my face that affects my eating also. There are several procedures that are used to treat tn. Maybe you could look into one of them. Anyway I hope you can find something to help you.
mean laureen is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New to this. Have trigeminal Neuralgia 2mchpn New Member Introductions 3 02-06-2008 09:18 AM
So, Trigeminal Neuralgia.... jowen214 Multiple Sclerosis 12 01-26-2008 09:27 AM
Trigeminal Neuralgia maryln New Member Introductions 4 12-03-2007 07:23 PM
trigeminal neuralgia Debbie Anderson New Member Introductions 3 09-30-2007 12:57 PM
trigeminal neuralgia lexiathedragongirl Multiple Sclerosis 3 09-25-2006 12:01 AM


All times are GMT -5. The time now is 09:20 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.