Hi there, sorry for the delay in getting a response. These folks here are usually quite prompt to respond and answer your questions.

I can't give you a lot of information, but hopefully someone will come along shortly to help. I have Atypical TN and pain is centered in my right ear only, like most folks here I started out taking tegretol for the pain and it helps some, but then I only have episodes once a week or so. If you do try the tegretol, ask for the time released form - brand name is "Carbatrol". However, the best relief I get is from placing a heat pad(bag) on the side of my face.

Sorry to not be more help, but I just wanted you to know that I read your post and that I care that you are in pain.

Good Luck!

Rhonda

I used a heat pak on my face as we drove to Mayo clinic. I laid down all the way there. The medication is kind of a trial and error process.
When I tried Tegretol, I broke out with big red spots like measles and they lasted a week. So sorry for you to be in a chemical explosion.
That alone would be traumatising. Bless, Doodle bug7

I am losing hope..... I was just told by a respected neuro sugeon that " I got nothing for ya" that my best bet is a pain clinic. I have a appt. with them later in the month.
I started tregatol and it doesnt seem to be doing anything yet, but i am at 100 mgs a day and growing every 4 days or so.

thanks for the responce. I dont know where to go from here?????????

Hi Cheminj . Dont be so doubtful about a pain management doctor /clinic.
I know for me my pain management doctor was the best help I have gotten... and because of them I was able to get refereed to other specialists and finally getting my neuro stimulator implanted. A neuro wants nothing much to do with me... as they cant offer much help .
Do you take any vit B or use Caspian cream . there are allot of things that help. Help not cure... . Keep your search going I know you will be able to find something or a combo of things to help control the bad pain. I think up top in the stickies there is a listy of things that others have found helpful. and we are always here if you need a pal , support or have a need to vent .
let us know how we can help you .
Positive thoughts for you to find an answer for you to ease the pain .
PEACE
BMW

Is this normal.... So meny doctors and so little answers. My fear is that i will be drugged into zombie state.

I find alot of them saying " In time the pain MIGHT heal or atleast your body will get used to it" I guess my job in the process is to try to remain sane until that day.

I wonder if the swelling will go away also or will that remain?