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#251 | ||
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Junior Member
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I received my insurance approval today, and my surgery is scheduled for 11/29 for trial and implant 12/6 at University of Chicago Medical Center, I asked the Neuro Surgeon what device they would be using and they said St. Jude and gave me number to call, I called St. Jude and they said a rep would call me back, any questions you think I need to ask??? Thanks in advance as always
Kathy |
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"Thanks for this!" says: | Burntmarshmallow (11-09-2011) |
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#252 | |||
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Grand Magnate
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oh
![]() ![]() ![]() St.Judes ,Cheryl has the same A St.Judes . I would ask how long is response time for meeting with a rep when or if the unit needs adjusting of programs . will you have same rep that works with you or will you have a different rep each time. i really cant think of anything else to ask right now. I know once the trail is in you will have questions on working the program .you should get a video showing you how to use it. and we are here too. infection is going to be the biggest thing with after the surgery both with the trail and the final . i know i sound like a broken record saying that to everyone but it is the truth and needs to be stressed. keep this short but those are the questions I would ask. ![]() ![]() PEACE BMW |
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"Thanks for this!" says: | kwebster (11-09-2011) |
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#253 | ||
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Junior Member
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Thank you for your thoughts-Since rep didnt call me today, after I left message I guess I am a little concerned and to be 5 hours away from home during the trial period my plan is to get a hotel close to the hospital but I dont know what else to think about, sorry even tho I got approval today I wish I was happy now all of a sudden, just been crying all day trying to figure out how to pull this all together, can I do it alone? I am afraid, I am sad, I am nervous I am trying to be positive this is as good as I can pull together today......
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"Thanks for this!" says: | Burntmarshmallow (11-09-2011) |
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#254 | |||
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Grand Magnate
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Kathy
![]() PEACE BMW |
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"Thanks for this!" says: | kwebster (11-09-2011) |
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#255 | |||
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Grand Magnate
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Kathy check your Email on your comp .. not the private message here .
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"Thanks for this!" says: | kwebster (11-09-2011) |
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#256 | |||
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Grand Magnate
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this is a video commentary that discusses the PNS
http://www.painclinician.com/video/id/88 it may help others understand this surgery . Credits to Kwebster . I nor Kwebster promote this surgeon or any neuro surgeon, doctor hospital or clinic. sharing this is only to help one understand the PNS surgery and its purpose. Thank you Kathy . ![]() PEACE BMW |
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"Thanks for this!" says: | kwebster (11-12-2011) |
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#257 | |||
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Grand Magnate
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Five more days Kathy. It is great that you will have help
![]() We both have some college visitors right now lol . You best be enjoying ![]() You will do fine. remember they have you awake durring part of surgery.So try to focus and let doc know when you "feel it" even if it is thumbs up for good and thumbs down for bad. the better the doc can tell it is reaching the area the better the placement. 5 and counting down .. Be in touch soon. PEACE BMW |
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"Thanks for this!" says: | kwebster (11-23-2011) |
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#258 | |||
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Grand Magnate
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Today is your trial surgery Kathy and I have you ,your doctor and family in my prayers for this to be a smooth successful end to the horrible pain that hasnt been controlled. I hope the PNS will lower your pain and get you back into life again.
I will chat with you on the sidelines later if possible. It is close to your surgery check in time where you are so ..Best of the best luck ![]() ![]() PEACE BMW |
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#259 | |||
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Grand Magnate
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![]() I have to Happy dance ![]() ![]() ![]() ![]() ![]() ![]() continuing ![]() ![]() ![]() PEACE BMW |
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"Thanks for this!" says: | kwebster (12-03-2011) |
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#260 | |||
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Grand Magnate
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Kathy You are doing great one more day ..In less then 24 hours you will have the PNS all under your skin. no more wire hanging off your face . you will have a new buddy ..the power unit aka battery by your collar bone . that will be where you will probably notice different then the trail. but you will be getting more programs to work with . I am so sorry the IDOT rep didnt give you any choices with the trial. You did awesome getting the rep on phone and figuring out the issue.
![]() ![]() It sounds like you are ready when we chatted on phone for that long 5 hours drive tonight. bring your meds and Have a safe trip to from and while you are there. May God and the angels keep guiding you threw this final surgery and the healing , protect you from infections ,complications and make this a full and complete successful ending. . . so you can get some of your life back again and control the pain. I hope you get your Christmas present early and that by tomorrow at this time you will be programmed in and getting some rest without monster pain in your face and jaw. ![]() ![]() Almost there you can do it ![]() PEACE BMW |
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