It is so good to read that giving the stim a full try over time is beginning to show some positive benefit for you, Lily!! I found that using it continuously although varying the intesity of the signal allowed my body to "soothe" into the signal overall as a pain management tool, while giving me rest, at night, then more vigorous stim, during the day when I needed it. This kind of 24/7 technique for me is working to help me just bodily acknowledge "it's there" and use it for the intended purpose.

Hoping and praying that the rest of your efforts at Trial go well,
Mark56 PJ

Dear Calewark- It is so hard to read of your endless BURNING pain as you struggle to await your permanent implant without reaching out to HUG you in this electronic world . You have with such strength endured so much both physically and emotionally through the surges of pain, and I so Hope and PRAY that between now and 5 Aug. you will have some rest, some peace, some release or moderation from the excess of pain which overcomes. You are continually in my thoughts and prayers as you struggle, and I know as a group we just want to put you in the center and GENTLY give you a .

May this day be a better day in some way,
ASAP,
Your bro,
Mark56 PJ

QUOTE=Mark56;678858]Dear Calewark- It is so hard to read of your endless BURNING pain as you struggle to await your permanent implant without reaching out to HUG you in this electronic world . You have with such strength endured so much both physically and emotionally through the surges of pain, and I so Hope and PRAY that between now and 5 Aug. you will have some rest, some peace, some release or moderation from the excess of pain which overcomes. You are continually in my thoughts and prayers as you struggle, and I know as a group we just want to put you in the center and GENTLY give you a .

May this day be a better day in some way,
ASAP,
Your bro,
Mark56 PJ [/QUOTE]

Cheryl,
I have been trying to think of a way to say the beautiful words that Mark just expressed. It is so tough to know that you are suffering like that, and I pray so much that you will find the relief that you so deserve once the stim is in.
Please know that I reflect every work that he has so wonderfully stated above.
Here's another group hug, and please remember, you are never alone.

Lily

Hi Lily,
I so hope that you read this post tonight. I understand from Tina that you are going thru some tough times today. I want to share with you about having the leads taken out. First of all, there is not pain when they take them out. I did not feel anything. I wanted those leads out really bad. They were all tangled in my hair, it would hurt when the generator would move as it was so heavy, all the cords on my chest where not sticking and falling off. I was a mess. I just could not wait to get them out. It was like a huge thing in my mind that it would help to get them out. It was not 30 seconds when I told the Doc....oh my god......I have to have them back in. I realized how much they really did help and started my despair of waiting for the permanent. The pain was bad. It was like the nerves were so happy to have the wires gone and they could start their streaming. The pain did settle down to the normal pain that led me to wanting the stimulator. You have to hang in there. Do not panic. It does work and you had some times that showed you that. I hope you are not going to the er. That will show on your record and could be a problem as the insurance co may think that it was not working. Pray for the pain to go away. I understand that tomorrow is the day that the leads were to come out anyway. I know you have a problem with a ride. Take that time and take a walk, read something...just do something to pass the time before you can get back on the road. Maybe she could drop you off at a shopping center were you could get a cold drink and keep your mind busy which helps you not notice the pain as much. If you have an attack, just go outside someplace away from people and then just calm down. You can do it. Be strong just for a little longer. You will be okay. I so hope you can read this tonight and if you need to talk please call me. I am at 303-722-1307. I live in Denver so closer to your time and I will be up late tonight so please call if you would like some encouragement. I been through it all and still am. I would love to talk you through it. If you do not call please let me know how you are. Hang in there sister.
Love
Cheryl

Thanks for the reply Cheryl.
Thanks for the welcomes guys. You are all awesome. Bless you all. I am praying for pain free days for us all.
Cindi

Hi Cindi,
How are you doing? We have not heard from you since your first post. What are you doing about your pain? Are you still in a lot of pain as before? Let us know. We pray for you.
Cheryl

Hi Cheryl,
Thank you so much for this post - you are right - they came out today, and I didn't even feel it. So strange! But the nerves are definitely responding now that I am home, and I am keeping really quiet.
My husband finally called in to work and took the morning off to take me. I feel bad about that - people depend on him at his job.
I think that my NS is going to bat for me for getting it approved. It will work to his advantage too if I go through with it.
I am hoping that you are feeling better, I gave Tina a little tip to give you that may be helpful. It frustrates me to hear that you will be two days short.
But keep your chin up, dear Cheryl, and you will be there sooner than you think. Mine will happen sometime late September / early October. So long! Oh well - he's in demand so often becuase he is great at what he does.
Hugs to you, and lay low, ok? Be gentle to yourself and ask for all the help you can (be demanding if you have to )
Lily

Cheryl,
I am still hurting and BURNING. Got my meds changed up yesterday and will be back at the doctor on Monday to see if I've gotten any relief at all from that. Also, my neurosurgeon is supposed to be e-mailing me any time now as a follow up asking if I feel any better. Then I can ask about the stim. They brought it up after my surgery so I hope they will still be open to talking to me about it.
Praying for all of you that are waiting, hurting,or have been there. Thanks for the support and friendship.
xxx,
Cindi

Lastnerve It is good to have the trial all done with yet at same time it is like ... crap I wish I had a bit more longer or as I hope you might find ...dang that thing helped I want the sucker back .
Dont not feel to bad about Hub missing part of work day... it is life showing you there are people who care and love you. You deserve all that and more sister!!!
Late Sept or early Oct humm I am Oct born would be a kick if it ends up the 5th . But for right now going to send out big heavy vibs for this PNS option to smoothly proceed into approval mode and the wait be short with final implant and pain manged a total success !!
FYI You fit in here just fine!!!


Cindi your in our thoughts I hope both doctors are open to the idea of PNS trail.
if they need to they could read this thread.on one of the pages I have how to find a doctor who dose this Neuro Stim / PNS . at least it is something to have in mind before doing motor cortex .
It is great getting to know you. You bring it up if the Doctors dont. . . Sometime it is like your on your own to find another option .

Cheryl it is getting close we need to start a count down for B.B.
give yourself time to adjust to the med change your having right now. your doing pretty great . Way awesome you will have some others there before and after. .. I hear P.J might be around .
this neurotalk place is filled with the most spectacular people!

Thank You everyone .
PEACE
BMW...Tina