Thanks Lily. You're right, I did not mean inside the brain! eeek! Not ready for that one! Yes, the branches of the nerve. Mainly V2 for me with some V1. My most painful area is the infraorbital nerve under my eye socket close to my nose. If he could just get that one spot I'd be happy! I call it "the mother-lode" of pain. That makes sense about the nerve path getting worn down like a monk walking in circles. When I went to the Cleveland Clinic the doctor there recommended their 2 or 3 week long cognitive behavior therapy program where they work on 'reprogramming' the brain's reaction to pain signals. I don't have the time or money to do it, but it would be nice. I'd just love to go away from work and home responsibilities and just stay at the hotel for 2 or 3 weeks!
Mary

It is nice to see you Ron and Bulliemom .

@Ron welcome to neurotallks t.n. forum.
Yes it is very true that most doctors do it below the neck. That is because for treatment in managing t.n. atypical , Bi Lat ,a.d. ect pain above the neck in face, head eys etc..)
It is not approved by the FDA or the gov. yet as a option . For spines and back it is... so yes it is hard to find a doc. even tho it is the same stimulation device. the olny difference is the placement. Perhaps that will change.

@Bulliemom and Lastnerve
As far as I understand this whole PNS stimulator implant idea..
They are trying to target a certain area of the branch of one or more ..v-1 v-2 or v-3 .Cheryl has one for each branch. anyways the idea is to hit the nerve branch in a ideal area so the pain signal is scrambled or interrupted ... makes static of the signal before its back to your brain telling you "Pain Pain". trying to at least lower the baddest pain. they are trying to go for the branch. my guess would be to target the area right before the damaged part..if they know where the damage is...
tho Easygoing hers is in back of head and slightly different then a PNS. I think not sure. have to go back and read.
and again I say IT DOSE NOT MAKE YOU PAIN FREE!! it is a way to Help manage the pain... Being able to lower my pain down a bit.. For me it saved my life.
The hardest thing is having to face and realize that I have this pain for me it isnt going away . to learn how to co habituate with the pain. Hard to do for sure ...accept it face it figure it out ... but thank God for forums like this and people like us...

I have personal things going on at moment but will be back soon . sending prayers and positive energy to the room.

PEACE
BMW...Tina

Hi Lily
Nice to see your post. It has been awhile since I posted much on the site. Seems like fall brings lots of work in my garden and house. I also am getting ready to go to Florida to meety with 6 other gals who all have Tn and some with Tn and Ad like me. I am the only one with the stimulator. They are all anxious to see it work.
Hope all is well with you and your pain is not getting you down. Take care and take care of yourself.

Love
Cheryl

Hi Cheryl, Nice to hear from you too
Yes, it's like battening down the hatches for winter. Your meetup sounds GREAT! Promise to come back and report in about it - I would LOVE to meet someone with this disease. How is your stim working out for you?
I'm doing much better, thanks for asking.
Take care, and have fun!
Lily