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05-03-2011, 09:32 PM
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Nope...seems not. But I will try to see if I can live with this. Damn.
Lily |
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| "Thanks for this!" says: | Burntmarshmallow (05-04-2011), Mark56 (05-05-2011) |
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05-04-2011, 01:24 PM
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Grand Magnate
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    You ARE a warrior with a huge heart hard few weeks for me kinda lurking but will ring you sometime soon Lily  There are other options if this does not work as good as it did during the trail.. and I AM here right with you no matter what sister!! PEACE BMW |
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| "Thanks for this!" says: | Mark56 (05-05-2011) |
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05-05-2011, 01:16 AM
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Grand Magnate
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Just Prayin for you, you brave hard fighting soul!! Hoping and caring that the best will come to be your lot, and that this will be resolved.
CARING, Mark56 ZZZZZ
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| "Thanks for this!" says: | Burntmarshmallow (05-07-2011) |
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05-31-2011, 11:36 PM
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Hi everybody,
Sorry that I have been so absent. It's been hard. I just requested to have my stimulator removed today, and my neurosurgeon agreed and is making the arrangements. More to follow. Lily |
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| "Thanks for this!" says: | Mark56 (06-01-2011) |
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06-01-2011, 03:36 AM
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Grand Magnate
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I am so sad for you that this did not work out to be your solution. This is absolutely awful news, and I continue to pray for you that your situation will come out for the best. How I so hope you may find relief!!
Prayin, Mark56 zz
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06-15-2011, 08:48 PM
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#6 | ||
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I am so sorry for my absence. I feel so selfish for not participating more, and I promise to be back again sometime soon. The "explant" is taking place tomorrow, and I cannot tell you just how thrilled I am to have this device out. I am truly sad about losing it - there was great potential! There were times when the unit did its job well.
But the line is still too short, will always be too short, and they say that they don't have a longer one. The NS swears that he put a loop of a couple of inches in there, but just the second day after the second revision surgery, There was zero slack. Zero. So he told me to just keep stretching and stretching and stretching. And I did. So now there is a tear in the insulation at my collarbone and I keep getting zapped with electricity. This is such a comedy of errors that I must be doomed. But at least we found this all out with a PNS, and not with Deep Brain Stimulation or Motor Cortex Stimulation. Just think about how bummed I would have been then! I know that I am just trying to make light of this all...it has been a very hard journey and I will be so glad to get away from the neurosurgery department - for a very, very long time. Thanks, in the meantime, for the hugs and support  , and I promise to be back soon to pay it forward.Lily |
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| "Thanks for this!" says: | Burntmarshmallow (06-16-2011), Mark56 (06-25-2011) |
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06-16-2011, 06:13 PM
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#7 | |||
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Grand Magnate
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  Lily No words ... But I am still here
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| "Thanks for this!" says: | Mark56 (06-25-2011) |
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06-16-2011, 10:37 PM
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#8 | ||
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Member
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I wasn't aware of all this. I'm just sending you some major hugs.
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| "Thanks for this!" says: | Burntmarshmallow (06-18-2011), Mark56 (06-25-2011) |
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Prayin for ya Lily
Hi Sweet friends
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