Dear Bluemom,
Please do not scare yourself with what you read - if you worry about tomorrow llike that, then you are wasting today. All of us are very different, as are our outcomes. Your TN will be unlike any other person's. As will your treatment outcomes. Some people live a full life with this condition, some are more affected - you just don't know. Many people go into remission for many years. But please, do not worry yourself needlessly with things that are NOT happening to you - that will just make you sick with worry and won't help anything - in fact, stress will exacerbate your symptoms. So please, just try to take it easy and wait to hear what the neurologist says. Surround yourself with a comforting energy, and shake off that fear - it will help you to do so. And keep talking to us, we will try to help you as best we can with any questions.
Hugs,
Lily

Hi Bluemum they are a fab bunch on here sorry you have the dreaded TN Try not to get to scared by all you read hun we are here for you. xxx

Thank you easygoing, mylastnerve, and supermoo! I was dx'd with TN today and prescribed Neurontin generic. I go back in 4 weeks. Plan B is Carb(something) if Plan A doesn't work. Doctor also ordered an MRI with contrast. Not sure if I'm willing to put the money out for it though because I had a negative MRI without contrast in January.

Thank you, mylastnerve, for talking me down. After I read your post, I took a deep breath and made a conscious decision to look on the positive side--I found a great neuro, I have a prescription in hand, and right now the pain is very, very mild.

Easygoing, funny you should ask about RA. I do not have that, but I do have Lupus. It's a real disappointment to have so much going on, isn't it? I'm sorry that you have RA, and I hope it's under control. Do you know if autoimmune disorders are related to TN at all?

bluemom