[Rae of Hope]

Originally Posted by bluemom

Hi, Kimberly! I'm very sorry to be meeting under such circumstances--that being said, Welcome! Thank you for sharing your story. I am amazed at how different each person's story is. Like you, my TN was dx'd early, and by the first doctor I saw. I also see my TN developing as the weeks go by. I have developed my first trigger, stressful situations like arguing with my teen.

I am interested in your dental experience. I need to have a cavity filled in the worst possible area of my mouth. I am so afraid that it will kick my mild TN into high gear. I saw my neuro this week and he said my fear is valid. He kept saying, "Make sure your dentist takes extra precautions," but he didn't seem to know what those precautions might be! And, my dentist has heard of TN, but that's about it.

Any advice???

Bluemom

Hi Bluemom,

It's so nice to meet you! Yes we have very similiar situations. Yes, stress can and almost always (especially an arguement) brings on a vicious attack. The mind/body connection is an amazing thing.

Regarding your dental needs coming up, have you gone into a remission of any kind yet? I read info on TNA that you should wait to do any dental work if you can until the nerve is calm. Looking back, the year before I was diagnosed I had two bouts of tooth pain for about 3 weeks each in two teeth. The teeth were fine. It was just the nerve starting to act out. The two teeth are both major culprits when I have pain in my teeth. Then on 11/19/09 I had two cavities filled. The dentist hit the nerve twice with the numbing syringe - it was horrible. That and the drilling brought on a horrible case of TN. It is so hard making these decisions. I also have work needed on the TN side but I also have bouts (days, weeks) of remission. Even if I was in remission, I would be prepared with Dilaudid (which helps me) and a couple tabs of Baclofen and be prayed up before I saw the dentists!!!!

I hope that helps!

My best to you!
Kimberly