The ignorance to this condition by medical staff is SO aggravating! I had to call the insurance company that handles my private disability (you, the one that comes with your corporate cafeteria plan), and they are in the middle of deciding whether I get their disability payments for the next 30 or so years. So she (a nurse) was leafing through the patients names, and then finally found mine, and she said "Oh yeah.....headaches"
Excuse me lady, headaches are to trigeminal neuralgia what a stubbed toe is to a broken ankle - what a bb gun pellet is to a shotgun, what a dust devil is to a category 5 tornado - PLEASE!
And why the hell do they have a nurse deciding this, not a doctor?!? I get so disheartened sometimes with all of this!
You know, when you go to the ER, and they have to categorize your condition, and often they will put "headache" for lack of a better category - but then the folks at the insurance company read my med records and they see that word "headache", and then they categorize it that way in their minds as well. I had no idea of the hell of being ill before all this happened.
Sorry, I am really suffering today, and I just needed to rant. Thanks for listening. And for new folks, please don't think that your experinece will be the same as mine - I have complicating factors that kinda make my situation worse.
Hugs to you all
Lily