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Old 11-17-2010, 08:41 PM #1
Mylastnerve Mylastnerve is offline
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Mylastnerve Mylastnerve is offline
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Hi Needpainrelief,
I'm so sorry that you found your way to us. I'm glad you're here. While none of us here can tell what the diagnosis is, we can all relate to agonizing facial pain.
What they gave you sounds like a nerve block. Yes, they are VERY unpleasant, when the doctor is good and finds the nerve well. Nerve blocks can last for varying degrees of time. I pray that yours lasts for a good long while.
Trigeminal Neuralgia is VERY hard to treat, so let's first hope that it isn't that.
Here's a medical paper to read to get familiar with the various conditions related to the trigeminal nerve:
http://thejns.org/doi/pdf/10.3171/foc.2005.18.5.4
There are subcategories that do refer to injury of the nerve. That you have it on both sides is curious, because TN is hemispherical, meaning that the nerve on each side leads to only that side of the face. I am sorry if indeed they hit both sides.
If it were me, and I am saying ONLY if it were me, with what I have learned about nerve pain, I would seriously find a way to get those implants out before they do any more damage (like taking out a second mortgage seriously). It may cut the odds of having permanent damage. You asked for advice and that is mine, point blank.
That the doctor (plastic surgeon?) said that you should have the nerves cut would lead me to seek out a Neurologist ASAP. They know nerves, and again, with what I have learned about nerves, the LAST thing that I would do is have them cut. That is the last thing that most people with TN would do, and many don't, because of a type of nerve pain that can be worse than TN.
This is alot to take in, and I don't mean to scare you.
So please, get to a very good neurologist, or a good Head and Neck specialist, as soon as you can. Do not wait until the nerve blocks wear off. And do consider getting the implants out quickly if you can.
I really hope that this helps, and I don't mean to scare you, but if you can head permanent damage off at the pass, then you have dodged a BIG bullet.
I will check back in in a day or two.
Take care,
Lily
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Burntmarshmallow (11-18-2010)
Old 11-18-2010, 11:34 AM #2
needpainrelief needpainrelief is offline
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needpainrelief needpainrelief is offline
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Lily,
Thank you so much for your response. I did see a Neurologist and we tried pain relief through medication, but I don't respond to medication well AT ALL (I've had side effects that I can't deal with). The doctor I am seeing is an Oral & Maxillofacial Surgeon. I had upper and lower jaw reconstruction - during the procedure the implants were put in. During the original surgery, many of my nerves were cut so I don't have too much feeling in my face right now, but I can feel pressure (if that makes sense). So, permanently cutting the nerves isn't THAT big of a deal for me since I've been dealing with the loss of feeling for several years now. Then again, permanent means I can't change my mind down the road...

I've thrown around the idea of getting the implants taken out and from what I am understanding this is major surgery. I have never seen a plastic surgeon and never thought about doing so to be honest.

I'm meeting with the Oral Surgeon this afternoon and hopefully I'll have some more answers.

Thank you again for your post, I really appreciate your advice!!! I'll let you know what happens this afternoon.
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Old 11-18-2010, 01:24 PM #3
Mylastnerve Mylastnerve is offline
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Dear needpainrelief,
I am really glad to hear that you are not suffering from the nerves that have been cut, but you do seem to be getting extreme pain as well from them Cutting the neve that IS bothering you could have consequences. There is a condition called Anesthesia Dolorosa, that can occur when nerves are cut. Please google these words and read up on it before seeing your doctor. You need to know about it to make an informed decision with him/her. I am SO GLAD to hear that you are seeing one today - that's exactly who you need to help get this figured out.
Best of luck today!
Lily
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