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Old 11-29-2010, 07:22 PM #1
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Location: Kansas
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Doodle bug7 Doodle bug7 is offline
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Join Date: Oct 2007
Location: Kansas
Posts: 336
15 yr Member
Default Numb on the T.N. side

When I came home from Mayo clinic, the left side of my face was numb as the result of partially cutting the trigeminal nerve and going back 3 days later to sever the trigeminal nerve. I stayed there for three weeks. I know that it sounds good to have your face numb after having so much pain but it is a trade, Your TN pain gone but you will have a different pain, mimicking the T.N. pain.Although you are numb, the horrible pain comes to life and stays.It is called Anesthesia Delorosa.The first morning home I woke up and I felt as if half my face was missing. I had to look in the mirror to get reassurance that it was still there. I touched, looked, and then broke down. I had a feeling of disbelief that all this had happened to me. My husband held me as I screamed out "I can't do this, Oh God I can't do this."As time went on I had to accept it, as it is and will be a very big part of my life.
When you are numb on one side of your face, eating can be
challenging as part of your lip is numb. The food or drink can come out on that side of your mouth and you don't even know it's there. I use a bib or what I am eating will drop on my shirt. I had to have a tube put in my ear and have ear infections easily. My eye was too dry so The Doctors put a plug in my eye and we had to experiment to get it right. I don't have all my hearing on the numb side.My nose is always dry in the nostril on that side and I get sinus infections.
Being numb is a hell all of it's own.
Thanks for listening, Doodle bug7
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