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#1 | ||
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New Member
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YOU GUYS MAKE ME FEEL SO GOOD. Yes Lily I do not think at 70 I am going to be become a"crack whore". I kept telling them I had enough brain cells left to not take too much, but they treated me like a second class citizen..Seems like this Neuroglist just wants to sit behind his high priced desk and look down his nose at me. I bet he knows very little or nothing about TN.
Keep on having good thoughts. Have a nice day. It really bothers me because he has some very sick patients, not able to fight back. Macy |
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#2 | ||
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Member
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Awww, Macy, you just made my day with that joke - that gave me a big grin.
![]() ![]() Lily |
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#3 | ||
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Junior Member
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Almost nothing. They can do the same thing I can which is coming up with different prescription. I just need them to write me one.
Wedmd is your friend. |
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#4 | ||
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Junior Member
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[QUOTE=NT User;726370]Almost nothing. They can do the same thing I can which is coming up with different prescription. I just need them to write me one.
Wedmd is your friend.Neurologist You have provided me with validation. Every neurologist I see wants me to try meds that I have ready tried during My tn journey. I provide them with a long list of drugs I have taken but they put it a side. Almost like If they prescribe the drug in some magicAl way it will work. They have no understanding of the fact I am working full time and the side effects of changing meds are a huge deal reflecting job performance.if they can't help me I wish they would just be straight with me and not expect E to go down that road of repetitious treAtment. My psychiatrist has been the most helpful and understNding with treTment. Oh how j long for the pre tn days. Surgery Mvd was my downfall. The surgeon takes no responsibility for dAmage done. Left facial numbness, constant burning stinging pAin. He says the nerve will heAl. It has been 10 years. Please someone take responsibility. Please don't mKe me feel lime A malinger or a non compliant patient for not wanting to try the same thing over and over again. |
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#5 | ||
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Junior Member
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They have a technician that does the testings which is great. Sometimes Neurosurgeon could be good for advice.
We all know there is 2 options : 1. Rx 2. Surgery Surgery isn't the option for me since its not severe. Right now I am on 600 Carbamazepine. I take 400mg before sleep and 200mg in the morning but causes enough Drowiness to take over my life. 200mg had no drowiness. If they don't care about you then they are in just for the money. Do research first before seeing one. [QUOTE=Meganmole;732151] Quote:
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#6 | ||
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Member
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I second what NT said, do your research, but I say on the doctor. There are a lot of sites where patients rate them and that can give you some insight as to what they're like, to a degree. You can also add your experience if you're so inclined. I know the frustration of them wanting you to try the same drugs again, I've been there and done it and eventually, I've stopped seeing them because of it. Trying one med after another takes its toll on you and your life, all facets of it. Hang in there.
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#7 | ||
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Junior Member
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As far as interactions goes, I can do that research too.
Whats a good site that shows ratings and comments for doctors? |
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#8 | ||
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Member
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Quote:
and here is another one I've visited too www.vitals.com. There are several more out there but the first one I encountered is the "RateMDs" site. I don't know that any of these could be deemed as good, but they are another source of info. |
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"Thanks for this!" says: | NT User (01-08-2011) |
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#9 | ||
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Junior Member
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hi, i am new....anyone have any tricks for bms esp outer lips????gum helps but not for lips.....also, anyone tried lyrica?????thanks so smuch!!
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#10 | ||
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Junior Member
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I found out from another Neurologist that I don't have TN. I just have Neuralgia and recommended that I see a Oral Surgeon.
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