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Old 02-09-2011, 01:58 PM #2
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Burntmarshmallow Burntmarshmallow is offline
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Burntmarshmallow Burntmarshmallow is offline
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Burntmarshmallow's Avatar
 
Join Date: Sep 2006
Location: east coast florida
Posts: 3,456
15 yr Member
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It is impossible to tell another tn pal what they should expect cus the symptoms are so varied. some have it more severer it is on both side aka bi lat or a different form of t.n. like pre t.n. ,atypical or anesthesia dolorisa etc and it is a constant burning or shocking zap . others its tight tugging feeling still others describe it as a cold frozen numb heavy feeling. some it comes and goes but most always all of us learn we have triggers that make the pain worse such as wind breeze touching the area hot or cold on that area ... etc. Many find meds help manage the pain and it seems like you are on that road. I would guess that the meds you will be put on will help you feel much better. usually a anti seizure med to start and pain med too. I you will need to let the med build up in your body and for your body to adjust to it ..like 2 or 3 weeks until you feel the full effects and the med works like it should.and you adjust to it and the side affects .
for me a 2 week pain time would seem VERY SHORT but it is because I have anesthesia dolorosa since 1999 and it is none stop. but for one who has never had t.n. 2 weeks is forever .Please dont try to compare me with you or you with someone else cus we are all different , on different meds or have had different surgeries.when one of us has something we post and find another like us but ALL of us support listen and we are all in this together... finding ways to end the pain.
please let us know how things go with your apt. or if you have questions just post and someone will reply I know I will if i can help dont think twice about contacting me by post or visiting my profile page to leave a message.. glad you found your way here btw welcome to our t.n family here at neurotalk.
for your neuro apt I would write down a list of your concerns and questions. it is the best way to get answers . cus many times you get in there and totally forget all the questions and concerns then ya leave and its like oh no i forgot to ask this ... so write it down and bring the paper with you.
sending positive thoughts and low pain to you. I hope you are feeling better and that your apt goes well. keep us posted. thanks
PEACE
BMW

p.s. sometimes a sinus infection is what causes t.n. as the infection can travel to the t n nerves so boo on those and glad it is not ms or anything of the sort.
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