Hi Bassetcase and BMW

Thanks to both of you for your reply. I really appreciate it. It is true with the doctors and i think part of it is that when i say my head, eyes, ears, maxillary/frontal sinus etc.. is wrong with me they just fob it off as me being over worried, but its consistent and aggressive.. they keep recommending a nasal spray, its not gonna do any good.. also the doc said ears, eyes and sinuses are NOT connected and its not related to each other etc.. frustrating..

I'm going to give it a little more time, i got a referral letter sent to a public hospital to see an ENT specialist but god only knows how long i'll have to wait for an appointment. If i get no relief in the next coming weeks at all i'm going to just go into A & E and wait to be seen no matter how many hours that may take.. whatever is going on isn't right or the reminence of a flu..

Back in 05 i actually had an MRI as i was showing all the symptoms of MS but nothing was found at that point..

Also another thing i have is also a nasal drainage too.. i dont have a blocked nose but have the drainage.. Today is awful with pains above my teeth and the gums.. it all feels sore and tightness spreading the upper jaw, across the cheeks, and right across the forehead and eyebrows.. with stabbing pains in the ears.. absolutely horrible..

In regards to dentists not too many dentists want to deal with me because my lower teeth actually sit on the main nerve that runs along the lower jaw instead of being a few mm above.. years ago i got all my amalgam fillings removed too and white ones in their place..

Hopefully this will be my year to get back into living again i'm 26 and the past few years have made me take a step out of things including work.

I'm so glad to have found this site and you guys, really appreciate the support

Chantelle

WHAT????? Your doctor told you that your ears your eyes and your nose are not connected??? I am sorry but I think the doc is wrong and please someone come correct me if I am ! but when one gets a cold a sinus infection ..your nose is affected your ears can also be affected as well as throat and eyes...that is why i believe they are CONNECTED. That is why I think your doc is wrong.but I am NOT a doctor I could be the one who is wrong but I DO NOT think so. I do think you need to keep on path to seeing another doctor..
can I ask what is A&E ..the emergency room????
stick with us we will help you as much as we can and hopefully you will get answers and your pains in control and some of your life back to normal.

PEACE
BMW

Hi

Yeah, thats exactly what they said.. today i was out and had an awful spell.. along with pain can it cause dizziness? i felt like i was going to hit the ground.. i was so out of it.. sharp pains in the eyes, forehead, ears, jaw, cheeks you name it.. by A & E i meant accident and emergency, like casualty.. i think many of the symptoms i have are similar to TMJ also.. i just hope its not anything more sinister

Chantelle

As far as I know most time dizzy is from medications like a side affect when on meds . Being dizzy isnt a t.n. symptom in most of the people I have talked with neither is eye sight decreasing .... A few thing you mentioned do seem like t.n. but others dont .
I would try to get apt with neuro and have request to have a current MRI done it has been what 6 years since your last one...2005 ??
hope your weekend has been going well for you.
Low pain and positive energy to you.
PEACE
BMW

I went back to a GP and told them i wanted a referral letter, thats to be sent off but not sure how long it will take.. it wont cost me anything thankfully through the public system over here but it could take quite a while meaning months or even over a year, i'll wait and see.. but as i mentioned i might just go to A and E and try get seen to then

Thanks for all your support

Chantelle

Chantelle,
I am a newbie today on this site as last week I was diagnosed with MS and still learning just what I am dealing with. Some great and comforting info on this site and I hope to contribute.
Last 3 or 4 years I had similar pains - it was center of sinus area to left ear and would come and go. Heat would trigger some of the time - my dr said sinus issues - so ate tons of meds with little help. I have fought allergies all my life so thought it made sense. Then the balance got so bad I would stumble and was miserable with face pain. My dr said I should see a shrink - huh, he thought I was faking! So, I changed Dr's and within 30 days new Dr ran a B12 test - came back I had very low levels that can cause a deadly version called Pernicious Anemia - I started shots and withing 2 weeks ( 1x a week ) my symptoms had just about vanished...
Now, got along good most of summer and last 2 months many other symptoms have surfaced which has led to MS diagnosis. However the face pain has been very minimal so I would check out the B12 test - simple low cost blood test and you might just get lucky as low B12 can cause symptoms very similar to MS and can cause permanent Neuro dmg...
There is a very good book called "Could it be B12" written by a California nurse - well worth the read...
Good Luck!
Randy

Hi

Apologies for the delay.

Wow.. your going through an awful lot like i am along with the docs thinking i'm just a worrier and making it up or causing these symptoms to manifest.. i have been told to see a counseller too.. its frustrating

I finally got an appointment for an MRI which will be on the 20th of April. I will take your advice and get B12 checked next time i get tests done.. i'm due to get more done as i have high bilirubin. I do eat quite well and take vitamins but i guess it all depends on how the body absorbs etc.

I find that if i wash my hair or go for a walk or there is a breeze etc the symptoms come back with a bang.. its horrible.. earaches, glands go up headache, generally sensitivity also heat tends to affect me in a different way, its all so difficult. I'm wrecked the following day after doing something small the day before.. feel out of it, unbalanced, confused, severe fatigue, i do have many MS symptoms so we'll see what the scan reveals. I also seem to have muscular pain in the neck.. have you ever mooved or stretched and get a sudden like shock of electricity almost travel through your head, its agony.

Hope to hear back from you, how are you doing lately? and apologies for the delay

Chantelle

If you look at an anotomical drawing of the trigeminal nerve, it branches out all through the nose - everywhere - my nose is one of the most sensitive parts of my condition. Any type of eyewear is unbearable. Regarding the astigmatism, I doubt that it is related. Many people have it. But I have to side with BMW - that statement is absolutely wrong.
Lily

Hi

Thanks guys for your reply. I managed to get an appointment for an MRI scan anyway as i have many MS symptoms also.

Just say i wash my hair and go outside i seem to get headcold symptoms, headaches, earaches, glands go up etc.. is that all part of it? like i have short hair and i got it cut the other day and its hit me again with vengence..

Do you know if anyone else has ever had all this just from washing their hair or going out into a breeze or for a walk?

Many Thanks

Chantelle

Hi Lily

Apologies for the delay. Along with your nose being sensitive what other symptoms and triggers do you have? I'd be very interested to hear all about it.. Its so frustrating that the air or showering etc causes my sypmtoms to immediately flare up.. MRI scan on April 20th so hopefully that will explain a few things but again so many docs write it off and think im just a worrier because what i'm experiencing but its all connected. Frustrating

Hope to hear back from you

Kind Regards

Chantelle