Can i also ask has anyone else experienced very bad memory loss when taking high doses of gabapentin? I mean to the point of not recognising a good friend of yours or not remembering simple words like fork,knife,towel and if you have has your memory come back fully? I have been off the gabapentin for about 2 years now and im terrified im going to be like this forever...feel like a senile old woman at times!

Hi Leanne, I've been on a lot of meds and they all affected my memory to some degree. When I went off of them, my memory gradually returned to normal so I don't think yours should be permanent, of course if you are still having problems after being off the med for an extended period of time, you should speak to your doctor about it.

Has any of your doctors discussed having an MVD since your MRI's have shown a neuro/vascular conflict? Is this something that you would be interested in? A lot of people have had good results with them. I see you are still having remissions, which is great. I stopped having them about five to six years ago but I also have bilateral pain and its a mix of classic and atypical pain. Anyway, people are sometimes scarce around the weekend, so check back during the week for more responses. There are chat rooms here as well. I don't frequent them though. Take care and low pain wishes to you, EE

You might want to checkout the TNA Facial Pain Association at fpa-support.ning.com There are a number of excellent videos of talks by a number of neurosurgeons etc. on the topic of Trigeminal Neuralgia. TNA's older wesbite (they are migrating to fpa-support.ning) has an excellent Knowledge Base etc. www.fpa-support.org

Hello Leeanne . you are across the pond . maybe this link might help .
Trigeminal Neuralgia Association UK patient support
http://www.tna.org.uk/

I agree with EE03 you have been off meds for a while. 2 yrs did you say ?? long enough for it to be out of your system and your memory should have slowly rebounded to some extent. I would bring it up with your Doctor.
I would research and ask about MVD surgery. If your MRI shows a compression MVD might be something to look into and think about .MVD surgery helps plenty of people with T.N.find relief and get away from the pain.

Look up top of page here and go threw the stickies , there is lots of help and info on the useful websites thread, tips for new comers etc..
Sending low pain to you. hope you have a nice week and things get better with your memory . Let us know how you are doing and if you have ??s or need help or info just post . we are here and we'll try to help. Glad you found us
PEACE
BMW