I am sorry I have not been around much I had some teeth issues and after working myself into being brave... last week had oral surgery to have teeth removed on my bad side where the stim wire and lead are located. I was told by my new neuro and my oral doc who put my plates in my lower jaw on both sides BEFORE my stim implant . . . that I do not have t.n. I have r.s.d . I am very confused and posting in here now makes me feel like a fake phony liar. for about the last 6 years I just wanted to help others any way I could.I say the last 6 years because it took me some time to accept my pain and to cohabitate with it and then feel comfortable talking about it and sharing. I have had this since 1999 after an accident with a 18 wheeler semi. my lower jaw snapped on both sides and the nerve on my lower right was dammaged. long story but I back then I was told and honestly thought and believed I had a type of t.n called anesthesia dolorosa as my pain doc and my first neuro doc told me ( theY put the neuro stim in) and wrote in my med files...I still think that .I always thought r.s.d. is lower area legs and arms not just one area on the face. So I am confused and just lurking. In my heart all I ever wanted was to help support others. now I feel like a liar . I am sorry I am confused even tho the new neuro and my oral surgeon tell me I have rsd... I just do not know what to say now or if I believe them. thanks for understanding and forgiving me for possibly posting in the wrong forum...I just do not know??
PEACE
BMW

p.s. I do know my stim works better then any med be it I have R.S.D or T.N. the stim works for me since July of 2002 with no issues .