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04-28-2012, 12:55 AM | #1 | ||
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Thanks for responding!
You're right--I have been around the block with meds. Nothing has helped. The first neuro I saw literally threw up her hands and said she couldn't help me. The second neuro heard about the facial pain and said I had TN, and then pretty much tossed me over to the surgeon. Here's my dilemma: I have had migraines on the left side of my head for decades. Then I started having what I thought were cluster headaches--an intense burning behind my right eye. Then the facial pain started--I don't need to describe THAT. The problem is that the migraine is now 24/7, the eye pain is becoming more frequent and longer-lasting. It seems that I have a triple thing happening. The neuro who diagnosed the TN only addressed one part of it before shipping me off. I guess my question is: Does anyone have suggestions for how to approach the docs? I don't seem to be getting heard. |
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04-29-2012, 03:07 PM | #2 | ||
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Take care and let us know how things are going. ee |
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"Thanks for this!" says: | Burntmarshmallow (04-30-2012) |
04-29-2012, 06:10 PM | #3 | ||
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You have no idea (or maybe you do) how good it feels to have some support from people who are also living with this!
At the risk of being thought of as a nutcase, I took time to type up a summary of my problems, including onset, location and quality of pain, etc. (this way, I don't have that deer-in-the-headlights feeling when I go in there). I have made up my mind that I will go over this with the doc. If nothing else, it will help me to determine if he is willing to meet me halfway and if I'm being taken seriously. That's all I'm hoping for at this point. You had a good idea about taking someone with me. I persuaded my husband to take a half day off work to come with. My appointment is tomorrow morning. I'll keep you posted. Ciao! |
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05-01-2012, 06:25 PM | #4 | ||
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Had my visit with the neurosurgeon. Took your advice and had my husband go in with me. I also took the time to write out my concerns and questions and had them put in my file. Now when I go see the neuro/oncology surgeon next week, hopefully we'll be ahead of the game.
Now we're talking gamma knife surgery. I'm doing research on that now. Any suggestions? Should I start another thread to request input? THANK you so much! |
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