Meldec,

I'm not a doctor, but TN doesn't usually affect the scalp. ON/occipital neuralgia does. I get ear pain with TN, but it is deep inside the ear. I also think there are a couple of other neuralgias that effect the ear, but i'm not experienced in them. Every time I see my ENT or PCP and complain of ear pain, they look in my ears and tell me they are fine and attribute it to TN. If you've had Shingles you could have post herpetic neuralgia that could leave you with nerve damage which equals pain.

Anyway, you've got appointments already made so you need to wait until you see the doctors to get some firm answers as to whats going on with you. I know its easier said than done, but try. Since your already researching your symptoms, its probably a good idea to write down any questions you come accross or any similarities you find in what your reading so the doctors can address any questions you have. Once you've seen the doctor, please post what he/she finds. There are a lot of good people on here with experience and even more support to offer as well.

Take care, ee

thanks and you're right of course. I'm not good at waiting...but sometimes I have no choice.

My ear pain is deep as well...way inside...but I do feel encouraged that the scalp thing is unusual with TN especially since it was the first weirdness I noticed. I'm very hopeful that my ENT will find some sinus/ear infection or even some tmj issue. Not that TMJ problems are a piece of cake, but at least they seem more manageable than TN from what I've read.

So, fingers crossed for next Tuesday. I am keeping a journal of sorts of what's been going on, because, if my head is anything like my car, it will suddenly stop having issues the minute I walk into the doctor's office...only to begin again ten minutes after I leave. Ha!