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Old 09-29-2012, 03:07 AM #1
Fizzbw Fizzbw is offline
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Ok, now you have a hat to hang your peg on

Firstly I'd buy The Book Striking Back. It's a must read for "us". Secondly, find a good specialist. Third, don't panic, stress and all it's lated conditions make the pain worse, practise relaxation and deep breathing. One good one is five deep breathes, count up then count five more counting backwards. I solved a bad attack last night using this alone, it can be done. Still couldn't do anything else, but at least the pain had gone!!

There is a wealth of information on line, but do treat with some caution unless you can follow the provenance. Also, be aware that there is a preponderance of scary stories on line as those who have TN in all it's variables who get better and are controlled, don't tend to hang around the forums ( I know there is a Latin plural for that... Forii??) those that do are much appreciated. So the denizens of these forums tend to be like me and have the rarer complicated versions....please don't take us as the norm.

Big hugs, keep in touch here, let us know what the doctor does next.

Niki xxx
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Old 10-06-2012, 02:17 AM #2
BethO2L BethO2L is offline
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BethO2L BethO2L is offline
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Amen and Halleluiah!!!!

Great advice. Remember if we like it or not Neuro's deal with medical issues far worse than TN so we don't always go to the top of the line when it comes to appointments even though we should!

Take a good Vit Bcomplex, get rid of the aspartame, MSG and caffeine. Take care of yourself, sleep, eat well and drink water. Learn to meditate even if it's a relaxation and breathing,,,,pick up a cheap CD at a book store and learn,,practice it daily,,,,it can lessen or almost prevent an attack if you can control your breathing,,,sounds silly but it's been helping me for a decade and still helps...

Take internet info and advice cautiously. Unless it's from a really reliable source ,,,just be careful...
Everyone here knows what you're feeling and going through and we each have our own stories but here ,,we all believe you and are here to give you what we have learned,,,,

Stay hopeful,,, there are still MD's out there that are trying to find new ways to help,,,,have hope.

Let us know what you need or just come here to stay connected,,
we know what you're feeling,,,so stay connected with us!!!
Beth
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