[Rgb66]

I was dx. With tn about5 months ago. I have no health insurance and a net dr was treating me with steroids injections in the jaw. However about a week ago I had a attack that has lasted almost a week. I finally went to er and was given fluids and morphine. I am usually very high tolerant c&w to pain but this was something that I can't explain. Now as I am on pain meds waiting to see a neurologist I began having a panic Attack a bit ago. I find myself afraid of this happening.

Any suggestions or insight.

Thanks
Rgb66

[jjlsongbird]

Hi, and welcome. I am a bit puzzled by some of what you wrote. I am not sure what you mean by "net dr". TN is usually treated with anticonvulsant meds, not pain meds, though sometimes I have been given narcotics for breakthrough pain. Please do see a neurologist. I hope you find help and can get rid of the pain. This isn't a kind of pain that is easily tolerated! It can be pretty high on the pain scale! I hope some others will have more to add...

[Rgb66]

Originally Posted by jjlsongbird

Hi, and welcome. I am a bit puzzled by some of what you wrote. I am not sure what you mean by "net dr". TN is usually treated with anticonvulsant meds, not pain meds, though sometimes I have been given narcotics for breakthrough pain. Please do see a neurologist. I hope you find help and can get rid of the pain. This isn't a kind of pain that is easily tolerated! It can be pretty high on the pain scale! I hope some others will have more to add...

I meant an ENT physician. I hope so , I find myself very afraid to make any moves that could cause it to start back.

[jjlsongbird]

Originally Posted by Rgb66

I meant an ENT physician. I hope so , I find myself very afraid to make any moves that could cause it to start back.

I know this advice is easier to say than do, but try not to worry about it. There are meds and there are surgeries and some folks have times when it goes away.
It helps to have a plan of what steps to take if it gets worse, but don't assume the worst.

[Rgb66]

Originally Posted by jjlsongbird

I know this advice is easier to say than do, but try not to worry about it. There are meds and there are surgeries and some folks have times when it goes away.
It helps to have a plan of what steps to take if it gets worse, but don't assume the worst.

Thank you,i went to a neurologist today. 150.00 up front. He wants to do lumbar. Puncture, MRI of c spine , ncv and extensive lab work,before he will even talk about trying something. I have no health insurance and can not. Do this. He said I was wasting his time.

I made an appt with my old primary care doc for tomorrow. Already have run out of money.

[jjlsongbird]

Originally Posted by Rgb66

Thank you,i went to a neurologist today. 150.00 up front. He wants to do lumbar. Puncture, MRI of c spine , ncv and extensive lab work,before he will even talk about trying something. I have no health insurance and can not. Do this. He said I was wasting his time.

I made an appt with my old primary care doc for tomorrow. Already have run out of money.

Hmmm. Sorry this is so difficult. All my doc needed years ago was an MRI to rule out a tumor. I can understand a doc wanting to run a few tests, but I find it rather appalling that he would tell you (a patient who is suffering!) that you are wasting his time! That is terrible! I hope your primary care doc can help. A neurologist is best at treating this, but I was treated for several years at the beginning by my internist.

I hope you can find a way to get some health insurance. It is very likely that you will need ongoing treatment if you have TN! Fortunely now it doesn't matter that you have a preexisting condition.

[thekitchenwench]

I don't like the statement 'wasting my time' you are in pain and need assistance in elevating that. I would find a different dr. and I would look to get some insurance coverage as soon as you can. The doctor does seem to be doing a workup to rule out many things with all the test he wants to do.

Sorry