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Old 11-22-2013, 07:51 AM #1
Jennica Jennica is offline
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Quote:
Originally Posted by maxinthebox View Post
does it feel like a migraine, if you know what that feels like. It's like where the ear and jaw meet? I keep feeling like that and have no idea what nerve pain feels like.
The next day after my first attack it felt like I had a migraine. Not that I ever really had one but from the way I was feeling it sounded like one. Bad headache, nausea, light-headedness, general weakness.

During the attacks the nerve pain was pulsating, like I felt it with each heart beat. The worst pain ever, so bad that I cried out loud enough to scare my dog who was down stairs. Lol. At the time I thought it felt sort of like an electric shock type of feeling combined with pain. It came from the jaw/ear area.

Four days now since the last attack. I've been working the trigger points. My jaw/tmj feels looser and more relaxed. I'm crossing my fingers big time. I think the anxiety of waiting for another attack to happen is almost as bad as the actual pain of the attack. I would be so happy if it turned out to just be trigger points from painting the ceiling.
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Old 11-23-2013, 10:23 AM #2
jjlsongbird jjlsongbird is offline
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Thanks for the update and I am so glad that you have seen your doctor and are going to see a neurologist. A lot of what you are saying now does NOT sound like TN to me. I don't think massaging would do anything to prevent a TN attack. And the kind of electric shocks that come with TN are like quick stabs usually or a cluster of stabs, not usually pain that is longer. Good luck. I hope you get some good news and help! It is great that you haven't had an attack for a few days.
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Old 11-23-2013, 11:57 AM #3
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Thanks so much!

The pain actually was, like you say, quick stabs. I'm not really sure if working the trigger points is what has stopped the attacks or if it's a coincidence. Which leads me to my next question. If it was TN, would I have had another attack by now? I had three in one week but none for five days now. Once symptoms of TN start would the attacks come pretty regularly or could they be spread out over time?
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Old 11-23-2013, 01:28 PM #4
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TN is different for everyone as far as the actual pain they experience, as well as the frequency and reoccurrence.
Usually people with TN avoid touching their face or anywhere that may be a trigger. Trigger points will usually bring on an attack.
I have Type II Trigeminal Neuralgia so my pain is pulsating and electric but also constant. Every day.
The site of your TN is similar to mine. Mine starts in my teeth but radiates to my cheek, jaw and into my ear. I was diagnosed a long time ago with TMJ. There are many that believe that is simply a blanket term and is largely overly misdiagnosed.
When my TN goes into my ear it mimics and ear ache or sinus infection. I have been seen many times by my GP to check for infections and there isn't one.
Receiving a TN diagnosis can be a long and difficult road. An MRI and a neurologist are the first steps. Also, if your "attacks" do return you should start looking into medication because, like Jean said, they can escalate quickly.
Good luck!!!

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Thanks so much!

The pain actually was, like you say, quick stabs. I'm not really sure if working the trigger points is what has stopped the attacks or if it's a coincidence. Which leads me to my next question. If it was TN, would I have had another attack by now? I had three in one week but none for five days now. Once symptoms of TN start would the attacks come pretty regularly or could they be spread out over time?
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Old 11-23-2013, 05:05 PM #5
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Thanks!

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Old 11-25-2013, 03:48 PM #6
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Arrghhh! Had another attack today. I thought I was home free because it's been a week since the last one. So glad I made that appointment with the neuro.
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Old 11-25-2013, 09:58 PM #7
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Oh no! Sorry to hear that

How long do you have to wait to see the neurologist?? If it is a long wait you should really start looking into meds.

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Arrghhh! Had another attack today. I thought I was home free because it's been a week since the last one. So glad I made that appointment with the neuro.
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