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Old 03-29-2014, 11:05 AM #1
justjane37 justjane37 is offline
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justjane37 justjane37 is offline
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Age is not a factor. It is common believe that this is an affliction that commonly affects older ladies. I had my first attack of Type 2 TN when I was 29. I have been dealing with this for awhile-I am now 37-and have done tons of reading. I often see people in their 20's with symptoms.

It is rarely hereditary. I think I have only come across two other people that have a relative with it. I am the forth person in my family to have TN, or to have symptoms of it anyways. All on my maternal side. There is actually a study being done at the University of Toronto on Heredity and TN. I am participating in that study.

Type 1 TN is described as lightening bolt shocks that come on as fast as they go. It may be many of them in a row but they do leave.

Type 2 is described as a constant, throbbing, deep and borring pain.

If have Type 2 but I also have symptoms of Type 1. Everyone's experience with TN is very different. It can affect different areas of your face and your pain patterns may be different than the next person's.

Feel free to ask anything and I hope that this helps you

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Originally Posted by VickiB75 View Post
Thank you for getting back to me. There is a lot of information about this online but it's hard to find the answers to the questions I have. I am 38 years old so I am worried that there may be an underlying reason why I have it. Does anyone know if it is heriditory as my maternal grandmother had it? And can anyone tell me what is the difference between T1 and T2? Hard to decipher all the mumbo jumbo about it.
Thank you so much for your help.
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Old 03-29-2014, 11:07 AM #2
justjane37 justjane37 is offline
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justjane37 justjane37 is offline
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I just wanted to add with Type 2 people are often pain free in the morning. It starts coming on sometime mid morning and increases through the day. Not everyone follows this pattern but many do.

My pain started in a tooth. It worsens over time and started moving into neighboring teeth. A couple of months later it was in my jaw, cheek and ear. It is something that you do want to take seriously. Have an MRI and see a neuro.

Quote:
Originally Posted by justjane37 View Post
Age is not a factor. It is common believe that this is an affliction that commonly affects older ladies. I had my first attack of Type 2 TN when I was 29. I have been dealing with this for awhile-I am now 37-and have done tons of reading. I often see people in their 20's with symptoms.

It is rarely hereditary. I think I have only come across two other people that have a relative with it. I am the forth person in my family to have TN, or to have symptoms of it anyways. All on my maternal side. There is actually a study being done at the University of Toronto on Heredity and TN. I am participating in that study.

Type 1 TN is described as lightening bolt shocks that come on as fast as they go. It may be many of them in a row but they do leave.

Type 2 is described as a constant, throbbing, deep and borring pain.

If have Type 2 but I also have symptoms of Type 1. Everyone's experience with TN is very different. It can affect different areas of your face and your pain patterns may be different than the next person's.

Feel free to ask anything and I hope that this helps you
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Old 03-29-2014, 03:59 PM #3
VickiB75 VickiB75 is offline
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Thank you so much for all of that information.

Mine does sound more like T2. It definitely worsens throughout the day. If anything cold or hot goes anywhere near the left side of my mouth I get the pain that starts off as a throbbing across all of my teeth then gets worse and worse until it is a searing pain all across my top teeth, back of my jaw, lower teeth and into my cheek. It lasts for a couple of minutes and I have to stop what I am doing until it eases. When it eases there is still pain there for about five minutes but it's more bearable. Cold air starts it off too. I was getting it during the night if I lay in certain positions.

I will look up that website, thank you for the info
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