Hi Ella,
God bless you for sharing your story. I hope I am still a long way from surgery as my Neurologist wants to try more meds. first. But, he also just referred me to a Neurosurgeon, so it's defiitely a possibility. I loved reading your story and it has helped me, as it did others, very much. Thank you....Bonnie

July 2009

Hi All,
Haven't been in here for a while, but I thought I would check in and give you an update on the results of my MVD.

This month marked the 4th anniversary of my surgery and I am pleased to report that I am still pain free and medication free.

That is not to say that I haven't had the odd twinge or shock, but I have been able to find a common denominator. If I have an episode (and it is only a couple of times a year) it is always within a day or two of the onset of menstruation. The other interesting thing, is that in the last 3 years I have always had an episode in the month of April.

Conclusion: Menstruation + change of season = TN symptoms

I am thankful for everyday the sun rises and I don't have to suffer the pain of TN or the side effects of the medications. I take no day without TN for granted. TN still has a strong emotional hold on me. I doubt I will ever be free of that.

I am always available to help or ask questions. I do not pop in here as often as I should. If you would like to reach me, please send an email to ellacjn@gmail.com

the 30th of July was my 7th yrs aniv of my stim implant
I am still med free but not tottaly pain free tho have good enough control over things most times. still have those days.
so high five to you and me
Thanks so much for posting an update I dont ever go to b.t. so it is great to hear from you Ella and I see Jean C posted too
always great to hear about old time contacts
MAY YOU ALWAYS stay pain free and many blessing to you and yours .
PEACE
BMW...Tina