EE I asked the pain doc today why if he virus has primarily damaged the trigeminal nerve do I have occiptial pain and even swelling and occiptial muscle spasms. He explained to me that the trigeminal nerve has nerve inflammation and if swollen and damaged and that when it goes into the brainstem through the skull it loops around and passes next to C1, C2 and C3 so he thinks the inflammed TN nerve is causing secondary pain and inflammation to my occiptial nervs. He even drew a picture and I was like wow ok I get it.

Another thing that has really helped me in terms of the TN pain and this constant burning is a precription triple numbing cream that i put on my forehead and other various places. When I use it I feel relief around the TV nerve and then it progresses to the back of the head and ON nerves. It surprised me but I am thankful for the relief that I can find. But then my TN is only secondary and neuropathic in nature and atypical to some degree.