Thank you. I am scared to go have a Cleaning, IT IS DUE IN MARCH. i HAVE BEEN USING A CHILD'S TOOTHPASTE WITH A FLAVOR OF STRAWBERRY NO MINT. YESTERDAY WAS GOOD TODAY IS BAD. Sorry my keys got stuck. I would like to know how long does it take for triliptal and nortripiline to start working? Sometimes it does and sometimes it doesn't. The doctor started out with one and has worked the medicine up. Today was horrible and still is. I flossed there and when I washed my face the tooth and gums started burning. I took a half of pain pill, and it hasn't helped at all. Just when I think every thing is better it starts up again. Does it ever get under control at all? Thankyou all for helping me. I suffered for three months and would rock back and forth crying not understanding what was happening to me. I wish I had known it wasn't the tooth. I never would have had it pulled. I don't know if I will be able to have a fake tooth put there. It is frustrating at times. I am so sorry you are all going through so much.

I am so sorry this is affecting you so badly at the moment, but that is the nature of this hateful condition. As Justjane stated, your meds will take a little while to kick in properly - perhaps a few weeks - then there is the time it takes to modify doses (while you are getting relief). You HAVE to hang in there and avoid things that may trigger severe attacks, things that are natural like flossing.
It is clear that your 'break through' pain meds are not enough for the level of attacks you are having. You need to have this adjusted to suit or Depression is a real concern.
Despite all this, all the pain, all the meds, there is hope. When you are left with a chronically painful condition like TN your mind in all it's Glory learns to cope with the pain better and things seem to become dulled most of the time. I'm not saying it's going to go away or become easy - but I hope for your sake that it does - it can seem that way.
Look after your mental health at all times. Come on here to question or vent, or just to seek some support.
Sorry if I've rambled a bit, was taken to a family event today with no meds - excessive pain - followed by everything at once.

Dave.

Thank you English Dave and Bless you both. I have been on the higher dose for two weeks.

I also have a question, does any one have bad days and good days on the triliptical> Is it suppose to work all the time or does it not help at times. I have gone 1 and 1/2 days pain free and then whamo it will start up.

Yes with TN I have good days and bad days. The pain could be in my left eye for five days and then on my right side tongue for one. I can have excruciating pain one day and ZERO pain the next. For me the pain comes on in "attacks" or "flair ups" with good days in between. I never know where or how badly it will strike.

The worst is the burning, my tongue burns and my lips then the tooth starts throbbing. Then the pain will stop and I think oh maybe the medicine will work, then the next day it will start up. Yesterday I washed my face and touched the area where the problem was and was in pain all day. Then all of a sudden it stopped, today has not been to bad. I am grateful that there are people who understand. This is so new, I need to ask so many questions sometimes I feel like a moron, as I am trying to understand and make sense of it all. Thank you again.

Whatever drugs you are on the pain and numbness can overwhelm their effect and cause an attack, I'm afraid. With the doses of the meds I'm on I shouldn't feel anything ever, but the numbness is a nagging irritant, and going out in a breeze under about 45℉ or having to take my heart GTN spray guarantees the pain to sear through my face.
As to your next post, never put yourself down for asking questions, it is how you learn the truth from fellow sufferers.
Always make the most of your good periods and avoid triggers, bad days will come and go.

Dave.

It can be frustrating at times. I read that here in the US there are not that many sufferers and so not many alternatives to help, as not a lot of studies has been done on this condition, because there are many more like us but they do not know what the problem is and where to go for help. I was lucky in that I went to another dentist who said it was a nerve problem and then sent me to the pain management Doctor otherwise I would have suffered much longer than I did. It has made me humble as I know there are people who are in the same position as me, and some are far worse. I wish I could cast a magic spell and stop all the pain for all the ones who have this horrible condition. Much appreciate EnglishDave.

Before I joined this Forum I assumed almost everyone with TN had a condition like mine in the brain physically affecting the nerve. I had no idea the root cause (pun: if we don't laugh, we cry) for so many was dental issues.
That's what I enjoy about being here - along with the connections with other members - learning how you all come to be here, and trying in some small way to help.
I hope everyone is having a flare-free day.

Dave.

I have trigeminal nerve injury from a dental procedure. It has nothing to do with classic trigeminal neuralgia. It is imperative that you seek a second dental opinion by an expert on your condition!