Dear Dave and Vowel Lady,
Thank you so much for your replies! The positive energy I find in this group is helping me immensly! I am very sorry you have to go through so much pain too! It's been about a month for me and I can barely remember what it is to be pain-free and enjoy life. I hope to get an appointment with a second orofacial specialist next week. I will ask her about the meds you mentioned and see if she also wants me on Trileptal. If she confirms the prescription, I will have to take it... Hopefully, seeing the specialist will shed some light on the cause of this horrible state. She is a dentist as well, so I will ask about the possibility of a dental problem. I will copy my post to the dental forum but also keep posting updates here. I hope that I will find a solution that someone with similar problem might find helpful. I hope both of you feel better soon!

Hey Blizzard,

Any luck with your pain?? pl respond me..

Hello; this is my first post since I just joined the site. I'm dealing with my second bout of trigeminal neuralgia since my diagnosis in 2006 in spite of 2 gamma knife procedures and brain surgery. So far, no meds have stopped or even reduced my pain. In fact the left side of my face is numb since the brain surgery; but the pain has recurred in a different place on that side of my face. I am currently seeing a neurosurgeon at the Mayo Clinic who has recommended two different procedures to eliminate my pain or at least cut it in half. Is there anyone out there who has experienced this sort of thing? It's very frustrating to live in chronic pain for this long with no relief with meds or the surgeries. I'm do happy for people who are helped with medications.