Anybody else try taurine yet?
If so, results?

Maybe if you post this question in the chronic pain forum too you might find others who have been on taurine . It sounds like a fairly new med . That is good news if it helps reduce t.n.pain or any type of pain. I would be interested in what others say about taurine also .

A Warm Hello to All,

Just want to share a bit of info.:

In her book, The Wahls Protocol, Terry Wahls, M.D., mentions the amino acid Taurine boosts GABA production. (She also identifies NAC and lipoic acid as GABA boosting supplements.)

If you have not yet heard of Dr. Wahls and her research, please take a look @ terrywahls.com and/or do a search on her. She also did a TedxTalk, etc.

For the earlier poster in this thread referencing "mitochondrial functioning," please also see Dr. Wahls research.
Her first book addressed mitochondrial functioning, as does her TedxTalk: "Minding Our Mitochondria." (Forgive me, I cannot recall your screen name at the moment.)

Dr. Wahls is raising funds to do further scientific studies on her research.
She has an amazing story about her own recovery from progressive M.S.

To Our Healing!
DejaVu

P.S. MrsD- I, too, was recalling the Tourettes Community having used Taurine. Thanks for your reference to this. The magnesium taurate looks interesting. I am doing some research and may be attempting a trial for my PN and other chronic pain, as well as a neuromuscular condition, "myotonia." I may write about this elsewhere on this forum.

We have a fellow poster on PN getting over some form of muscular problem...He calls is Amyotrophy.
http://neurotalk.psychcentral.com/member.php?u=64553


But there are many problems that can happen with
muscles:
http://patient.info/doctor/myopathies

MrsD - Thanks for mentioning this. I will read up on the PN forum!
I am awaiting approval for DNA testing to confirm the type of "myotonia."
Thanks so very much for being you, MrsD!

I saw this formula the other day at the store
http://www.swansonvitamins.com/jarro...trate-100-tabs

Has Magnesium Malate, Potassium and Taurine 350 mg.

Anyone have any thoughts on this for facial nerve pain?

BTW, I read most of Terry Wahl's book and loosely follow her on FB. I should watch her Ted Talk. On FB, someone recently wrote in who has Sjogrens Syndrome and said they dramatically improved following her diet.

I don't know if this is typical for Sj. syndrome, but I can say that going gluten free, reducing sugar and dairy and eating a lot more veggies has helped me with fatigue AND oddly some days my mouth and eye dryness just isn't too bad. I wish I could zero in on exactly what it is. But previously, I was always parched and my eyes literally scratched. Things are far from perfect, but I sure do appreciate any signs of improvement. This diet I put myself on has some similarities to the a Wahls protocol.

She (Dr. Wahls ) seems to have basically cured herself from MS! Maybe this diet can help with nerve pain.

Hi Vowel Lady,

You've been a member for many years. I remember you from years ago. It's nice to return to Neurotalk and see some of the same people are still checking in here. Have always enjoyed your posts.

There are so many testimonials of people with all kinds of conditions improving on the Wahls Protocol. It's truly astounding!

This protocol is one of the few dietary protocols to have some scientific studies behind it. The Wahls Foundation is raising monies/seeking research funding to do further scientific studies on the Protocol. (As you know, Dr. Wahls is a researcher by profession. Her own story is just incredible. She had tried so many protocols in order to try to heal. She had studied hard trying to find answers within nutrition and supplementation, even when so ill and unable to work.)

Thanks for mentioning the Taurine supplement. I am a fan of "Jarrow" products.

I have been following Dr. Wahls for a few years now. She had started out with "talks" with relatively small groups of people on the internet. I had just happened to have been subscribed to a group which had invited members to these talks. This was quite sometime before this book was published. It wasn't long before her work was recognized as potentially significant and people got behind her and her "science."

I believe she will obtain more funding for studies and her work will be more fully recognized as truly helpful, truly "healing" for many health conditions.
I have heard her interviewed many times. While she is trying to obtain funding to complete studies on healing M.S., she is getting so much feedback/testimony about healing for so many health conditions. She realizes the research has to go beyond just M.S.

As I understand her current protocol, which offers guidelines for three different levels of "intensity," it's meant to help with autoimmune conditions.

Dr. Wahls also offers membership to an online group where members interact and work together to adhere to the protocol, ask questions, obtain support, etc. I believe this particular group membership pays a monthly fee in order to participate in the group.

Dr. Wahls' work offers some hope for people trying to heal from chronic conditions. I am reading up and am slowly easing into the protocol. I have found I have been too tired lately to go into the protocol all of the way, all at once. I probably need to ease in as I detox gently.

To Our healing!
DejaVu

mrsD-
thanks again for these links.
I will check in on the member's posts.

The link for myopathies is a great resource!

I have had extensive work-ups over the years, including nerve biopsies, etc. I have sensorimotor axonal PN and other conditions - autoimmune in nature - and have had these for many years.

In the past 3 years, I have started to show more clear signs/symptoms of an additional neuromuscular condition. Neurologists had witnessed it first-hand in the ER when I had been admitted to the ER one night. Lucky for me I could see a neurologist to the ER -- That came about by my telling the Attending P.A. I refused to leave the ER until I saw a neurologist, even though the PA had already written my discharge note. After a short, yet intense debate, I saw a neurologist. The Neurology resident recognized the neurological involvement and the need for assistance within 5 minutes of witnessing the signs, which were profound by the way. (No idea why the PA could not see anything wrong. Since electrolytes were fine, he wanted to discharge me. I could not walk, could not use my hands, etc.)

We've done more testing including repeated EMGs, NCVs, labwork (including repeated paraneoplastic panels). I have seen a specialist in Muscular Dystrophies. A few MD neurologists have consulted and they all suspect a "myotonic dystrophy." We will be doing DNA testing soon.

I am being treated for "myotonia" in addition to being treated for PN and other autoimmune conditions.

Thanks again, mrsD. I deeply appreciate your insights and your kind assistance.

To Our healing!
Deja Vu

So which taurine brand would be the best? I usually just drink a monster energy drink and that is fine, but sometimes I don't want the caffeine or sugar. I tried Now formula, but they have stearic acid and it doesn't go down right.

Jarrow has magnesium stearate and one formula is pretty expensive for 200 capsules it's $50 on amazon.

I've been taking Spring Valley brand taurine supplements (1000mg). I'm not sure how good they are, since my pain is still just as severe as always (newly diagnosed; my pain started during Nov '19). I also take 250mg magnesium and 200mg turmeric (because I misread the label and thought it was taurine, but I don't like to waste things...) to try to help manage the pain, with no benefit.