Welcome, dookie!

I haven't been hit with TN but know of quite a few people who have found the pain very hard to take. I hope that you can find something that works for you.

Hi I’m new here as well. Your TN sounds similar to mine. I had sepsis from a ruptured colon and left me with a terrible undiagnosed sinus infection. 4 days into antibiotics I started having what I now am sure is nerve to bone in all the foramen ( pathways thru the bone I. The back of the sinus. I had three sinus surgeries a ballon compression rhizotomy and finally had thermal lesioning of my interorbital nerve.
This last procedure solve three of the 4 spots but it still affects the middle avolor branch of that nerve. Good news for me is that I believe my surgeon is willing to lesion the nerve deeper before the branch. I have been dealing with constant pain at about a 3-5 constantly for 3+ years with 1 -5 flares a day that last from 20 mins to up to 2 hrs and this is after the surgeries. Have appt tomorrow to speak with surgeon about next steps. I suggest WVU Rockerfeller neurological institute. I consulted with Mayo, Stanford and UTSW. One surgery at UTSW that I regret. DONT STOP DIGGING AND TALK WITH EVERY NEUROLOGIST THAT YOU CAN GET AN APPT WITH. Do an internet search for your condition and have your GP refer you to everyone that deals with neuralgia. The docs that specialize in TN all know who does TN and what type.

Steve