Hi all,

I have now been taking neurontin 300mg 3 times a day for 3.5 weeks and still not much relief the side effects have eased alot i dont feel as dizzy anymore! but i think the dose is not high enough i will be going back to my neuro on the 10th of april i am still waiting for an answer to see whether i am eligible for disability support pension i went for my work capacity assessement on tuesday and i have been assessed as only being able to work 0-7 hours per week and highly impaired. i am having a bit of a sad time at the moment!

mel

I wanted to say that it is possible if you dont find neurontin to work the doctor can try other medication like tregretol or heck there is many medications that help. so do not give up your doctor and you will find the right ones that work best for you. it may be just a matter of a higher doseage now that your body is adjusting to the med.
worring about assessment and disability is probly stressing you out and making pain too. I say you did your assessment and now it is out of your hands and you shouldnt worry about things you have no controll over... it will fall back in your hands soon enough and I pray it good news that you have
eligible for disability support pension . and really that is nothing to throw a party over. so magea hugs
and I have you in my prayers .
not feeling well myself i will chat with you again soon.
Peace
BMW

thankyou so much bmw, you know exactly how i am feeling i think you are right that i am stressing too much i am a stress pot that is how i got sick in the first place i worry about everything!! (except for myself) perhaps when i get the results i might settle down a little, i go back to the neuro on the 10th of april so i will chat to him about it then! it is realy nice to have someone to talk to that understands how i am feeling. I am sorry you aren't feeling to good either!! wishes of low pain for you too!!!

Melina

Hi Melissa,
I totally agree with what BMW typed about the stress of things adding to our pain. I've been on neurontin for 7 of my 11 yrs of having TN. I've had to adjust amounts from time to time, but as others have said..what works for one, might not work for another. The most important thing is that we have to just pray and pray again. Then realize that the stress of worrying contributes big time to out pain level and just "take a chill pill" as family sometimes tells me..realizing that if I don't calm down at that moment, I'll end up with lots more pain later in that day.
Hugs and prayers for you that you may soon find meds that ease your level of pain a bit more.

Marilyn

Hi mariylyn,

Thankyou, i know i just have to learn not to stress over silly things that are out of my hands i have just had so pain and trouble over the last few years its like living in a nightmare you never wake up from. I spent most of yesterday in bed in pain! i am sorry for having such a whinge but you ladys know how i feel!!

Melina

It is going to be the 10th soon and I want you to know I am holding you in my thoughts and pray your apt. with neuro goes extra well! dont forget to have your questions and concerns ready for the doc
And too still hoping you get the news you want /need for disability support as I know that can strech the stress out ...the waiting and wondering.
Warmest regards and may the answers come soon for a happy outcome!
Peace
BMW

I cant wait till my appointment, i have also been having the same stabbing pain on the opposite side of my head and my facial pain is getting alot worse i will talk to him about that as well, i spoke to my gp about the pain on the opposite side of my head she seemed concerned about it said to make sure i tell the neuro!! i hope i get the results for the disability support pension too but until then i am on sickness allowance which helps too! thankyou so much for your support bmw i hope you are doing well!!

Melina